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Maddie Lou

Welcome to my Cure Angelman NOW fundraising page and thank you for taking an interest in helping me raise funds and awareness for a cure!

Maddie is the center and love of our life, Maddie turned 3 on March 16th and is doing great!  Maddie is a happy, delightful child and although we love her just as she is, we need a cure - many of the issues that she has and issues that can arise can be very detrimental to her and her health.  Please read the brief discription of AS and of FAST below - if you have ever met Maddie you can understand our love for this little girl! 

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Thank you again for taking the time to check us out and for all the donations or for joining us in one of our many different fundraisers; as you can see you are helping us make a difference to reach for the cure!  

We try to update Maddie's webpage with information and our fundraisers if you would like to check it out:  www.MaddiesCure.com 

All our Love,

Dana and Maddies' Crew

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

101%
  • Goal $50,000.00
  • Raised $50,390.00
Top Donations
  • Maddie's Cure - $7,000.00
  • Maddie's Cure - $5,395.12
  • Ronald and Janice Weyland TTEE - $5,000.00
  • CP Berry Homes - $3,000.00
  • Maddie's Cure - $3,000.00
Sponsors
Donor Date Amount Message
Brenda O'Hara 6/30/2017 $50.00
CP Berry Homes 6/30/2017 $3,000.00 Curing our Maddie
The Ovanes Family 6/30/2017 $250.00
Maddie's Cure 6/30/2017 $1,500.00 Maddies Mixer
Amy Latimer/Maddies Mixer 6/29/2017 $1,000.00 Maddies Mixer
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