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Cure Angelman

Meet our daughter Charlotte, a 16-month-old who lives in Northern Virginia. We knew that she was one in a million and our little angel from the moment she was born. When developmental delays sparked testing, we received the phone call no parent wants to hear: Charlotte has a rare, non-inherited genetic condition called Angelman Syndrome. We were heartbroken.

Through connecting with the exceptional and inspiring community of AS parents, we have learned that there is so much hope for a cure! Please join us in supporting scientific research towards a cure and towards a better life for Charlotte. There are many diseases and disorders that will not be cured or treated in our lifetime. With your help, Angelman Syndrome will not be one of them.

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy.

Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Click SPONSOR ME to donate to my efforts in raising funds for Cure Angelman NOW!

100%
  • Goal $27,500.00
  • Raised $27,565.00
Top Donations
  • Nordstrom Employee Charitable Match Program - $5,175.00
  • Paul and Elsie Nicolette - $5,000.00
  • Boyd and Sara Camak - $4,950.00
  • Tim & Grace Nicolette - $2,000.00
  • Dean Fant Camak - $2,000.00
Sponsors
Donor Date Amount Message
Krysten Wendell 8/22/2017 $50.00
Joyce Cornilsen 6/8/2017 $25.00
Russ and Sue McLaughlin 6/8/2017 $50.00 Praying for Charlotte and her family
Jon & Em V.W. 6/8/2017 $100.00 It was great to finally meet Charlotte!
Denise Sylvia Villareal 6/8/2017 $25.00 Praying for a cure for your little one. Blessings
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