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Bobbi Barker-Kemp

Member Of Team Evie

Welcome to my Cure Angelman NOW fundraising page!

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Evie was diagnosed with Angelman Syndrome at 11 months of age. As new parents we were devastated at the thought our precious little girl may never speak, may never walk, would never graduate college, never marry, nor have a child of her own. Our life became a life full of doctors, hospitals, therapy, it was overwhelming at first, some days it still is. We are sleep deprived, we are scared, we sometimes feel helpless and if we could take her place we would. But we are hopeful, we know a cure is close. And with the proper funding a cure could happen as soon as 2 years! Wouldn't that be amazing?! So we ask humbly, please can you spare $10 to sponsor our beautiful little angel and the rest of the AS community and truly give our children a reason to smile?

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

3%
  • Goal $500.00
  • Raised $15.00
Top Donations
  • Sabra M THomas - $10.00
  • Carly & Norma - $5.00
Sponsors
Donor Date Amount Message
Carly & Norma 2/15/2017 $5.00 💙💙
Sabra M THomas 12/5/2016 $10.00 We Love our little Angel Evie


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