window width = px
progress bar width = px

Help Our Cause

Share

Team Sammy

Member Of Team Sammy

Welcome to Sammy's Cure Angelman NOW fundraising page!  

We have finally reached the point where hope is becoming a reality. A physician at UPENN has agreed to make Angleman Syndrome the next disorder he cures.  He uses a virus that can infect the brain with the DNA that Sammy needs.  That DNA will then produce the proteins that are need for her to have increased functionality. 

As a background...Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST has teamed up with the team at UPENN to fund the cure to get it to initial human trials.  While we don't know what the credentials will be to be included in the trials, we do know that by supporting the development of the cure financially, Sammy can "move to the front of the line" if she meets the parameters.  This could mean that she woud have access to the cure 2 to 10 years faster than if she waited for the trials to be over. 

So, we are looking to raise $10,000 for Sammy's Team.  

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

47%
  • Goal $10,000.00
  • Raised $4,700.00
Top Donations
  • Anthony Schiller - $2,500.00
  • Earl Beard - $1,000.00
  • Anonymous - $250.00
  • jeanne L Coco - $200.00
  • Nina & Larry Schiller - $150.00
Sponsors
Donor Date Amount Message
Earl Beard 6/30/2017 $1,000.00 Go Sammy
jeanne L Coco 4/6/2017 $200.00 Blessings to all.....
Anonymous 3/5/2017 $50.00
Sharon J Parkes 2/21/2017 $100.00
Barbara and Ted Widmayer 2/6/2017 $100.00
View All


Window Width: px

Window Height: px