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Catch the Cure 2017

Welcome to our Cure Angelman NOW fundraising page!

Tecwyn (13), Tathan (11) and Harper (4) are three kids each living with a variant of Angelman Syndrome in Minden Hills, Ontario.

For the past three years, their friends and family and community have joined together to host a celebration for International Angelman Day in February. The efforts of these three kids and their supporters have raised more than $40,000 for the Foundation for Angelman Syndrome Therapeutics (FAST).

This year, Catch the Cure 2017 takes place on February 18th. It's accessible by donation to ensure everyone can attend, and all events and activities are volunteer-run and/or donated to ensure every penny raised can be donated to FAST. The event raises awareness of Angelman Syndrome, celebrates inclusion and community and helps support essential and exciting research

We have opened this page to enable our friends around the world to easily make a donation in the names of our kids, and to help FAST lead the way with groundbreaking research.

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer's Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Click SPONSOR ME to donate to our efforts or click Register to create your own site and join us in raising funds for Cure Angelman NOW!

** Please note that donating on this page will submit your funds directly to FAST, and will add a tally to our own efforts as well as our AS community effort. Donations are submitted in US currency. **

358%
  • Goal $5,000.00
  • Raised $17,892.00
Top Donations
  • Catch the Cure 2017 - $15,000.00
  • Ross Barnstaple - $552.00
  • Minden Lions Club Activities - $500.00
  • Jennifer Reinheimer - $335.00
  • Municipality of Dysart et al - $200.00
Sponsors
Donor Date Amount Message
Catch the Cure 2017 5/10/2017 $15,000.00
Ross Barnstaple 5/10/2017 $552.00
Minden Lions Club Activities 5/10/2017 $500.00
Municipality of Dysart et al 5/10/2017 $200.00
Boyd and Katherine Jarvis 5/10/2017 $130.00
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