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Jenny S Compston

Welcome to my Cure Angelman NOW fundraising page!

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

My son Jackson was diagnosed with Angelman's syndrome before Christmas in 2016. When they told me my beautiful baby boy would most likely never walk or talk my whole world fell apart. I felt such grief for all the things that would never be and an overwhelming sense of helplessness. By donating you are helping to give us hope that the future we want for Jackson is possible and contributing to make it happen.

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

48%
  • Goal $10,000.00
  • Raised $4,808.17
Top Donations
  • Head Shaving Donations - $640.00
  • Graham & sherryl Compston - $500.00
  • Jenny S Compston - $250.00
  • Carolyn Dubber - $200.00
  • Katy S Cox - $200.00
Sponsors
Donor Date Amount Message
Carolyn Dubber 6/17/2017 $200.00
Nicole O'Sullivan 6/9/2017 $50.00 Sending love and positive thoughts to your beautiful little family.
Racheal 6/8/2017 $10.00 Xx
Courtney n Matt Hogan 6/8/2017 $60.00 ❤️Jackson
Rochelle Sowman 6/8/2017 $20.00
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