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Cure Angel Zara

Welcome to my Cure Angelman NOW fundraising page for ZARA!

Zara is my 3 year old Angel.  She was diagnosed with Angelman Syndrome a year ago.  As a mother, having a child with special needs is heart breaking.  Her love and smile compensates for the daily struggles.  The hope for cure in the near future keeps me going.  Even though Zara has to work 10x harder for day to day activities, she does not give up.  Each milestone is a great accomplishment.  The cure will allow Zara and others with AS to live a normal and healthy life.

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

67%
  • Goal $15,000.00
  • Raised $10,099.00
Top Donations
  • Viral Patel - $628.00
  • Dipak Patel - $500.00
  • Jinal Patel - $500.00
  • Parimal and Hinal Patel - $351.00
  • Anonymous - $251.00
Sponsors
Donor Date Amount Message
Neha 4/16/2017 $250.00 with love.
Aarya, Prima & Ravi 4/9/2017 $100.00
Sangita Patel 4/5/2017 $100.00
Parimal and Hinal Patel 4/5/2017 $351.00
Megan 3/26/2017 $50.00 We are praying for you. You are awesome
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