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Cure Angelman Now: 3 Little Angels

Member Of Cure Angelman Now: 3 Little Angels

Welcome to my Cure Angelman NOW fundraising page!

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

These are our 3 children, Lucy, Henry, and Stella.  They all have Angelman Syndrome.  They are all intelligent, fun, loving children but daily they are underestimated because they have limited verbal abilities and struggle with other aspects of the syndrome such as seizures, ataxia, fine motor skills, and learning delays. They are frustrated because they can't always get their message across whether it be that they want something specific to eat, something hurts and they need help, or simply to tell us they made a new friend at school.  FAST is so close to a cure and with your help, Angelman Syndrome will not only be cured in our lifetime but in the next 10 years!  Be part of our miracle and consider donating to FAST; no matter how small the donation, every dollar counts and will be matched! 

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

60%
  • Goal $2,000.00
  • Raised $1,190.00
Top Donations
  • Adam W Lott - $700.00
  • Philip M Reinheimer - $300.00
  • Jenn's Jamberry Fundraiser - $165.00
  • Alexander and Barbara Kustra - $25.00
Sponsors
Donor Date Amount Message
Alexander and Barbara Kustra 3/13/2017 $25.00
Jenn's Jamberry Fundraiser 10/26/2016 $165.00
Adam W Lott 9/17/2016 $700.00
Philip M Reinheimer 9/16/2016 $300.00


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