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TeamAJ

Welcome to my Cure Angelman NOW fundraising page!

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure.  FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

HI and thank you for coming to our page, my son AJ is 24 years old and has Angelman Syndrome.  AJ is one of the happiest and loving young men you could ever meet.  AJ is an absolute joy but we are so close to a CURE!!! What I would give for my son to talk, walk and be seizure free please make this happen.

Click SPONSOR ME to donate to my efforts or click Register to create your own site and join me in raising funds for Cure Angelman NOW!

31%
  • Goal $500.00
  • Raised $155.00
Top Donations
  • Grandpa & Grandma Jacobson - $40.00
  • Lissa E Allman - $25.00
  • Janice Stover - $25.00
  • Tonya Knebel - $25.00
  • Lora R Jacobson - $20.00
Sponsors
Donor Date Amount Message
Lissa E Allman 9/19/2017 $25.00 Happy Birthday AJ!!!
Grandpa & Grandma Jacobson 9/18/2017 $40.00 Happy 25th Birthday - we love you AJ
Janice Stover 9/18/2017 $25.00 Happy Birthday AJ
Lora R Jacobson 9/17/2017 $20.00 Happy Birthday AJ!
Tonya Knebel 9/19/2016 $25.00 HAPPY BIRTHDAY A.J!
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