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Team Naveen

Welcome to my Cure Angelman NOW team fundraising page!

Angelman Syndrome (AS) is a rare disorder affecting approximately 1 in 15,000 live births and is characterized by severe developmental delays, problems with motor coordination and balance (ataxia), loss of speech and epilepsy. Because of recent advancements in the understanding of AS, a cure for this disorder is not only possible, but probable. AS has been cured in the lab using several different approaches. We know what causes AS. We know that despite its often devastating effects, it is a simple disorder involving only one gene. We also know that curing AS will have a profound impact on other related disorders, such as Autism and Alzheimer Disease.

FAST is the largest non-governmental funder of Angelman Syndrome research and the only organization in the world that has a detailed plan and clear path towards a cure. FAST is setting a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched.

FAST is committed to bringing life-changing treatments to clinical trial within two years, but we need your help. We are asking everyone to join us in the Cure Angelman Now initiative because together, we CAN do this. Our time is now and every single dollar counts in getting us closer to our goal.

Our son Naveen has been diagnosed with Angelman Syndrome in his 18 months. We were devasted to know this news. But he his our angel. He smile and loving hug makes our each day a best one. Naveen still cannot walk and are not able to make any word. He likes music, books and water, his favorite toy is iPhone, favorite person is his sister, best time of the day is when daddy comes back from work, do not like the word "Goodbye", and only food he likes is Mac'N'Cheese. His life is full of therapies now. With your donation may be scientist will get a cure for our son and may be he will be able to walk, talk, eat by himself, or go to bathroom by himself. Please donate whatever you can. Please share this message with your friends, families, and colleagues. Try to double your donation by taking advantage of your company's corportate matching program. Also, pray for our son so that he can cope up with his challenging life ahead. 

SPONSOR our team fundraising efforts, or click Join Our Team to help us in raising money for Cure Angelman NOW!


Participants
20%
  • Goal $50,000.00
  • Raised $10,065.00
Top Donations
  • Ashfaq Rahman - $1,000.00
  • The GE Foundation - $600.00
  • Anonymous - $500.00
  • Albany Friends & Families - $400.00
  • Sudha Seenumani - $300.00
Sponsors
Donor Date Amount Message
Shourya Sarcar 11/1/2017 $50.00 Your son is an Angel !
Dmitry V Dylov 10/13/2017 $100.00
Krishan Luthra 10/11/2017 $50.00 Best Wishes
Nancy Stoffel 10/10/2017 $100.00 Hasan, Thanks for sharing the story of your son Naveen. I hope that the research will provide a cure.
Anonymous 10/10/2017 $100.00
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