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´╗┐Monday 6 November 2017
Table of Contents
This week we share an update to a legal challenge to PIP rules, brought by a client who hopes to make a difference for all those who live with invisible conditions and disabilities. In addition to this important piece of news, we bring you updates from the world of mental health.
NSUN news 
Over the last few weeks we have attended a number of events and meetings around the country.
This has included:
  • The Advocacy Project AGM
  • Birmingham University - Roundtable discussion: exploring ‘prevention’ of mental distress from the perspective of people with lived experience
  • Mental health Five Year Forward View  Independent and Advisory Oversight Board
  • Great Minds Think Differently event - Celebrating Dyslexia
  • Birmingham City University Research event
  • Interactions not Interventions Big Lottery event
More regional news needed - can you help?
Do you live outside of London? Can you send us local news to share with other members? You can email our info mailbox or / and call us 020 7820 8982
Selected blogs 
'Talking about race and mental health is everyone's business' - As a government adviser on its new review of the Mental Health Act, Jacqui Dyer aims to address the ‘dirty secret’ that black people are too often detained in inpatient facilities.
Understanding Psychosis and Schizophrenia: A response to Jauhar and Morrison - Anne Cooke and Peter Kinderman reflect on a critique. 'we welcome Sameer and Paul’s reflections: one of our aims in writing the report was to open up discussion and debate about this important topic'
UN report points to power imbalances - The Psychologist reports on 'hard hitting stuff from the special Rapporteur'
PIP discrimination challenge reaches High court 
high court
The Public Law Project (PLP) is representing a client, RF, who is bringing a challenge to the unfair and discriminatory way those with psychological distress are treated by the Personal Independence Payment (PIP) rules. 
PIP was introduced in 2013 as a replacement for the Disability Living Allowance and provides an essential lifeline for people with disabilities to support their higher costs of living.
Regulations that came into force in March 2017 mean that people with serious mental health conditions, who are unable to plan or undertake a journey because of overwhelming psychological distress, receive fewer points in the PIP assessment and are only entitled to a lower level of support, if any. 
PLP is acting for the claimant in RF v Secretary of State for Work and Pensions
Sara Lomri, RF’s solicitor and PLP’s Deputy Legal Director, commented that:
"My client is a vulnerable individual, who, though suffering significant mental health difficulties, is bringing this important challenge as the new rules will have a significant negative impact on not only her life,  but on the lives of many with 'invisible' disabilities.  She has told me that losing enhanced PIP for mobility means she will not be able to get the support she needs to travel.  This will have a huge impact on her ability to participate in society.
My client does not understand why people with mental health problems are being singled out and excluded from a benefit which is supposed to help them."
The ‘rolled-up’ permission and substantive hearing will be held in the High Court, RCJ, London on 12 and 13 December.  There is an anonymity order in place protecting the Claimant. Further enquiries should be made to
Participation in mental healthcare: a qualitative meta-synthesis 
Tokenism and lack of independence found as central themes for over half of the tudies used for this review.
Participation in mental healthcare: a qualitative meta-synthesis | International Journal of Mental Health Systems | Full Text
Facilitation of service user participation in the co-production of mental healthcare planning and service delivery is an integral component of contemporary mental health policy and clinical guidelines. However, many service users continue to experience exclusion from the planning of their care. This review synthesizes qualitative research about participation in mental healthcare and articulates essential processes that enable service user participation in mental health care.
Participation in mental healthcare: a qualitative meta-synthesis | International Journal of Mental Health Systems | Full Text
The findings of this meta-synthesis demonstrate that service user participation in mental healthcare remains a policy aspiration, which generally has not been translated into clinical practice. The continued lack of impact of policy on the delivery of mental healthcare suggests that change may have to be community driven. Systemic service user advocacy groups could contribute critically to promoting authentic service user participation in the co-production of mental health services. Policy stakeholders could also consider placing service users as leaders in key positions throughout mental health services, which may help in shifting the culture of mental health professionals towards a more recovery focused approach.
Read the full article here.
New online platform seeks stories 
 filmed interviews. People based in London
filmed interviewsBea Herbert is launching a web platform and she needs stories to share. Here is her message
''I am on the look out for anyone over 18, who is based in London and is open to discussing their experiences of mental health difficulties and/ or their experience of the mental health system. Submissions are also welcome from therapists, counsellors and other roles within the mental health system.
A new online platform is opening to allow an opportunity for people to tell their stories and to start exploring these issues together creatively. The platform will represent a turning away from current narratives around mental ' illness'.
Content will include filmed interviews, artwork,  poetry, articles and other ways of documenting people's experiences.
Filmed interviews can take place in Homerton, East London. However if there are issues with travel costs and practicalities, other venues can be discussed. "
If you are interested in taking part and providing content or discussing the work further, please contact Bea Herbert.
Mobile: 07746 631730
A Disorder for Everyone (AD4E) - Exploring the culture of pyschiatric diagnosis event 
Article ImageAD4E is coming to Manchester, this will be their 6th event. This year supported by Manchester Rape Crisis.
Date: Friday 8 December
Time: 9am - 5pm
Venue: Methodist Central Buildings, Central Hall, Oldham Street, Manchester, M1 1JQ
This day is for anyone who is interested in and concerned about the current debates in 'mental health.' It provides a space to explore the critical questions of the day around the biomedical model and the narrative of 'diagnosis and disorder!'
Contributors include Dr Lucy Johnstone, Jacqui Dillon, Dr Gary Sidley, Jo Watson & Nollaig McSweeney
Find out more about the day and book your tickets here.
Other debates include Liverpool and Brighton
Date: Thursday 7 December 2017
Time: 9am - 5.30pm
Venue: The Quaker Meeting House,22 School Lane,Liverpool, L1 3BT
Date: Friday 16 February 2018
Time: 9am - 5pm
Venue: Friends Meeting House, Ship Street, Brighton, BN1 1AF 
Social media toolkit for healthcare 
Free to download - for all
social media toolkit - healthcare
Skills for Health have worked with industry experts to create a Social Media Toolkit to instruct, educate and guide healthcare organisations on how to best use social media.
** Access your free toolkit here >, if you like it, join the conversation and share it using #HealthSocialTools **
It's also your toolkit, so if it's missing anything or you want to add to it, then please contact
Become a Trustee with the Helplines Partnership 
Meetings take place in London - this is a voluntary position
Helplines partnership Helplines Partnership Board of Trustees is looking to recruit an enthusiastic and self-motivated individual, with experience in fundraising and a particular focus on income generation for members and research for particular identified projects.

This is an unpaid voluntary position although reasonable travel expenses will be reimbursed.

If you think that you have the experience and wish to utilise your skills and knowledge to enhance Helplines Partnership Board and to help raise the profile of the sector, then please forward your CV and a covering letter detailing your interest in, and suitability for the role, to

A generic Trustee role description and person specification can be found on the
Application deadline - 22 December
Join the mental health act streering group 
Article Subtitle
steering group
Mind are recruiting people with relevant lived experience and skills to join a steering group to guide their contribution to the independent review of the Mental Health Act. Mind are particularly keen to foreground the views and experiences of people from the black and minority ethnic groups that are disproportionately affected by the Act.
As a freelance consultant you would be helping to involve people most affected by the Act in Mind’s work and to develop recommendations.  
The role involves 4-7 days’ work, mainly between December 2017 and summer 2018. Closing date for applications is Thursday 30 November at 5pm.

Find out more and apply here
Data protection workshop 
do you live in London, Use mental health services and regularly use digital media?
data protection Share your thoughts and concerns regarding the use of health and financial data

Date: 22 November 
Time: 10am – 1pm
Venue: Mental Health Foundation Colechurch House 1 London Bridge Walk SE1 2SX

for more information please contact Jo Ackerman
CQC November news 
CQC Consultation: How CQC reports on and rates the use of resources in NHS hospitals
CQC are asking for your views on their proposed approach to working with NHS Improvement to reflect their assessment of trusts’ use of resources in published CQC inspection reports and trust-level ratings.
CQC are also seeking feedback on how they can best combine the rating that will be awarded for use of resources with CQC’s five trust-level quality ratings, and how we will generate new combined ratings at the trust level.

Consultation will close on 10/01/18
Putting the public at the heart of CQC work
Making better use of people’s views, working closely with representative organisations and publishing simple, clear information are at the centre of our plans for engaging the public over the next four years.
On 26 October CQC published a new strategy for how they’ll engage with the public to help make us a strong, independent regulator that is always on the side of people using care services.
You can download the summary version of the strategy here.
The strategy is also available in Easy Read and Large Print.
Healthwatch England publish consulation results 
Healthwatch England Earlier this year, Healthwatch asked you to help shape their future strategy (2018 - 23).

Healthwatch have now published a summary of the ideas people shared, along with future aims:
• Empowering more people to their say
• Supporting a high quality Healthwatch service
• Making sure people’s views help improve health and social care
From this page, you can download the consultation document ' shape our future', and let Healthwatch know what you think in their next consultation phase.
GOV.UK news 
Volunteering guidance for NHS providers
NHS England has produced guidance to offer practical support and information for NHS providers to enable them to support the strategic ambition to grow and develop volunteering in the NHS.
NHS jobs
Closing date is 26th November and assessment in early December. 
There are at least 9 positions to fill!!
How does the NHS in England work? | The King's Fund
This animation is a whistle-stop tour of how the NHS works in 2017 and how it is changing. 
  • The final image is available for download here (19.31 MB, pdf).
  • You can buy a poster of the final image in A2 (420 x 594 mm).
  • The animation was produced by CreativeConnection.
  • This is an update of our 2013 animation on the structure of the NHS.

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