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Down Syndrome Information Alliance
April, 2014
Upcoming Events 
 
BIG Day of Giving
  May 6 | 24 hours to give where your heart is! 
  www.givelocalnow.org
 
Self Advocate Teen and Adult Sports-A-Rama
  May 10 | 5:30pm 
  Will Rogers School 4924 Dewey Drive Fair Oaks, CA 95682

Keep Calm & Prepare for your 1st IEP
  May 10 | 9:30 am - 11 am 
  East Sacramento Room at Clunie Community Center | 601 Alhambra Boulevard, Sacramento, CA 95816
 
  May 17 | 7pm 
  Grand Hall at Clunie Community Center | 601 Alhambra Boulevard, Sacramento, CA 95816
 
  May 18 | 9 am 
  Coloma Community Center | 4623 T Street, Sacramento, CA 95819
 
CLICK HERE for more event information. 
DSIA Celebrates 10 Years!
 
Saturday, May 17, 2014 | 7:00 pm – 10:00 pm
Grand Hall at Clunie Community Center | 601 Alhambra Boulevard, Sacramento, CA 95816
 
DSIA Celebrates 10 amazing years of serving Sacramento area individuals with Down syndrome, their families and the professionals who serve them.  The evening will include food, dancing, a silent auction, a DSIA book launch and a fantastic guest speaker: Dr. Brian Skotko a renowned board-certified medical geneticist and Co-Director of the Down Syndrome Program at Massachusetts General Hospital. 

Our goal is not only to create a fabulous and fun night out to celebrate the DSIA’s 10th anniversary, but also to raise valuable program funds to allow the DSIA to continue to support and empower people with Down syndrome, their families and our entire community!
 
Since its founding in 2004 by a group of local parents of children with Down syndrome, the DSIA has been dedicated to raising awareness about the tremendous abilities of people with Down syndrome, individuals who are on a great journey of their own. The DSIA also provides education, advocacy and support for families affected by Down syndrome to help them achieve their dreams. One in every 691 babies is born with Down syndrome and locally; approximately 1,000 families include a loved one with Down syndrome.
 
*Dance *Silent Auction *Photo Booth Fun *Appetizers & Desserts *No Host Bar

Regular Price:
$50 individual / $35 DSIA member
$90 couple / $65 DSIA member
$21 DSIA Self Advocate
 
 
 CLICK HERE to purchase tix
or CLICK HERE to become a DSIA member – you will receive your discount code with in 24 business hours of becoming a member.
CLICK HERE to print and/or share the flier for this event
Interested in sponsoring this event? CLICK HERE for sponsor information
 
What is the BIG Day of Giving?
 
BIG Day of Giving is a 24 hour online giving challenge. Starting at midnight on May 6, 2014, the community will come together to support close to 400 nonprofits from the region. It is an amazing opportunity to raise unrestricted dollars and shine the spotlight on our vibrant nonprofit sector.  The Sacramento region will join hundreds of community foundations across the country on this day through a national campaign called "GiveLocalAmerica". This unprecedented event is a celebration of giving by many donors, and locally, will not just bring additional funding, but increased awareness of the nonprofit sector who work tirelessly to make our community a better place. Giving challenges are sparking excitement in many regions just like ours, and have raised millions.  It's now our turn to do the same!
Giving on May 6 will not only show support for our community and the work of nonprofits, but it will also be an opportunity to make your donation dollars stretch! Many local businesses and organizations have contributed funds to a pool of matching dollars! This means that every dollar donated on May 6 will get a boost from this pool of funds through a pro-rated match. 
 
CLICK HERE TO LEARN MORE AND TO DONATE TO DSIA
  
Headline News

1 in 3 People Diagnosed with DS have Sleep Apnea
Digital Journal
Researchers in Edinburgh have been undertaking the biggest survey of adults with Down’s Syndrome and sleep disordered breathing to date. Currently, only 2 in every 100 adults with Down’s syndrome are investigated and treated for sleep apnea. However, the researchers in Edinburgh have found that 1 in 3 individuals with this syndrome suffer from moderate to severe sleep apnea which means that up to thirty percent of people are not being offered any treatment or advice for their condition.  

New research suggests connection between white matter and cognitive health
Science Codex
A multidisciplinary group of scientists from the Sanders-Brown Center on Aging at the University of Kentucky have identified an interesting connection between the health of the brain tissue that supports cognitive functioning and the presence of dementia in adults with Down syndrome. Published in the Neurobiology of Aging, the study, which focused on detecting changes in the white matter connections of the brain, offers tantalizing potential for the identification of biomarkers connected to the development of dementia, including Alzheimer's disease.
My Twin With Down Syndrome 
DSIA Members Kris Faith and Katie Faith Lingo share their story
Kris and Katie their inspirational testimony at Sun Grove Church  

 
CLICK IMAGE TO PLAY VIDEO 
Miss Shining Star Pageant - Kennedy Pageant Productions
 
A great opportunity for young girls with special needs to build confidence in a supportive environment! This is their chance to shine! Open to girls ages 3-23 with special needs.
 
CLICK HERE for more information. 
Crocker Art Museum - Wonder Lab 
May 4, 2014 
This creative gathering, open to all, is designed to spark playful experimentation! Children with learning and developmental disabilities, ages 5 and older, and their families are especially invited to enjoy inclusive and individualized art-making activities. This session of Wonder Lab is presented in collaboration with the Short Center South and the Crocker Art Museum's Art Access Committee.
 
CLICK HERE for more information 

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