Down Syndrome Information Alliance
March 2011
Table of Contents
Community Support Network! 
SAVE THE DATES for these Community Support Network programs in 2011.
Saturday, June 11, 2-4pm
Saturday, Sept 17, 2-4pm
Saturday, Dec 10, 2-4pm
River Life Church, 4401 A St., Sacramento, CA
For more information contact the DSIA at 916-658-1686
What your children without Down syndrome are thinking:
Sibling Issues
Saturday, April 16, 2011
Sibling Workshop
Brothers and sisters have opportunities - through interactive exercises, games, and role-playing scenarios - to learn with peers more about disabilities in an accepting and confidential environment. Siblings come away with more information, social connections with peers, and early lessons on advocacy. 
9:00 am - 10:30 am: Ages 5-8
10:45 am - 12:45 pm: Ages 9-12
Cost: $20 per family; $35 for non-members
For Parents/Professionals
Through a series of interactive exercises, parents and professionals will explore what questions, needs, and concerns are often raised by children who have a brother or sister with Down syndrome. Participants will come away with practical answers to commonly raised questions.
2:00 – 3:30 pm: Parents/Professionals
Cost: $20 per family; $35 for non-members
Cost is included when child enrolled in sibling workshop!
David P Meaney Education Center
10474 Mather Boulevard
Mather, CA 95655

Brian Skotko, M.D., M.P.P., a clinical fellow in genetics at Children's Hospital Boston, Massachusetts General Hospital, and Brigham & Women's Hospital, has dedicated his professional energies toward children with cognitive and development disabilities. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. Brian recently authored major research on how physicians deliver a diagnosis of Down syndrome to new and expectant parents. He has been featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s On Point, and ABC’s Good Morning America.
Dr. Skotko and his colleague Sue Levine have lead all-day and multi-day workshops for brothers and sisters who have siblings with disabilities across the country.
Do You Want to Train at Future Sibling Workshops? 
Dr. Skotko and Sue Levine have offered DSIA an opportunity to train interested older teens and adults (including parents) to run the sibling workshop in the future. That means DSIA can offer these workshops on a more regular basis at a much reduced cost. Unfortunately, parents who will have children attending the workshop in April 2011 will not be able to participate in the training as the trainees need to observe part of the workshop and parents. To ensure the workshops are a safe haven for children to be open and honest, their own parents may not observe the session. Also, be sure to note that the training requires a full day commitment on April 16th, and there is no cost.
If you are interested in being considered for the training, are able to make the commitment to doing a workshop at least once a year and will have the flexibility to work with DSIA's calendarplease contact Heather Prieto at or 916-658-1686. The DSIA will notify those selected for the training by April 1st. Please reserve the date (April 16th) to be sure you are able to participate if chosen.
Parent Wellness Event  
Promoting Health and Wellness through Facial and Body Yoga, Exercises/Back Strengthening, and Awareness
Friday, April 8, 2011
6pm 8pm
Fusion Yoga Studio
2310 Fair Oaks Blvd #C2, Sacramento Ca 95825
Come meet other families and professionals and learn about ways to keep you and your family healthy.
Please join Fumiko Takatsu, Dr. Andrew Scott and the Sacramento County Office of Education’s Physical Therapist and Occupational Therapists as they give you tips on staying healthy.
CLICK HERE for more information
Space is limited! CLICK HERE to Register 
This event is for adults only, no childcare will be available.
National Down Syndrome Society Affiliate Webinar:
I'm Down With You
This month, the NDSS affiliate webinar will be An Inspired Journey To Raise Awareness For People Living With Down Syndromewith Jagatjoti Khalsa, author of I'm Down With You, and Sarah Schleider, NDSS VP of Marketing and Communications. Hear the story of Jagatjoti Khalsa's inspired journey in creating I'm Down With You and learn how you can adapt and use the photographic images in your local communities to support advocacy efforts.
Please join us on Wednesday, April 13th at 12pm ET.  Space is limited.  Reserve your Webinar seat now at:
Slides from the presentation will be posted to   During the webinar there will be time for Q and A and open discussion on any topic.  Please feel free to submit questions to NDSS in advance of the webinar.  To submit a question, or suggest a topic for a future webinar, please email
Please feel free to share this webinar and the login information with your families and constituents, or anyone you feel may be interested in the presentation.  
Camp Lotsafun:
A Special Experience for All
Camp Lotsafun has been in the Nevada and Northern California community for over 30 years. Our mission is to provide recreational, educational, and therapeutic services to individuals with disabilities. At camp, campers have the opportunity to express themselves without any barriers. Each camper has the opportunity to learn self confidence, independence skills, build social connections and to have fun. The philosophy we operate with is that anyone who needs our services is eligible and able to receive them. Camp Lotsafun gives out scholarships to those who demonstrate financial need. Our camp is open to individuals aged 7 to 99 years old. There are various levels of abilities at our camp ranging from cognitive, emotional, and physical limitations. A parent said to us, “My child, aged 65, just went into surgery a few months ago. Once he recovered, his first question was, Can I go to Camp Lotsafun this summer?” This is what Camp Lotsafun is all about.
Camp Lotsafun operates overnight camps year round: fall, winter, and summer. This summer there will be 3 sessions of camp:
June 27-July 2           Ages 18 and up
July 4-July 9               Ages 7-22
August 15-20             Ages 15 and up
We are always looking for staff to become counselors for our program. If you are interested in becoming part of the special experience, email
Camp Lotsafun is always accepting donations to help send campers to our programs. The scholarships we provide allow a majority of our campers to attend. It is because of people like you that we can continue to provide services to a very special population.
If you would like more information, please see at our website at or call us at 775-827-3866.
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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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