Down Syndrome
Information Alliance
June 2011

Table of Contents
Community Support Network!
SAVE THE DATES for these Community Support Network programs in 2011.
Saturday, June 11
2-4pm
Saturday, Sept 17
2-4pm
Saturday, Dec 10
2-4pm
River Life Church,
4401 A St.
Sacramento, CA
For more information contact the DSIA at 916-658-1686
Dreamnight at Sacramento Zoo & DSIA PICNIC 
 
On Friday evening, June 3, 2011, 530pm - 830pm the Sacramento Zoo will once again host Dreamnight, a special free evening for children with chronic illnesses or disabilities and their families. Dreamnight is an opportunity to visit the zoo in a relaxed environment with other children and families who face similar challenges.
 
This is the sixth year the Zoo will be hosting Dreamnight. This international event began in the Netherlands and is always held on the first Friday in June. Now, hundreds of zoos around the world participate in Dreamnight.
 
For more information, and to RSVP contact the Sacramento Zoo at
916-808-5888 or info@saczoo.org
 
DSIA will have a picnic spot in William Land Park (GA-14 - please note the change!) from 5:00-6:30. Please bring your own picnic dinner and blankets. This will be a great opportunity to meet new families and connect with friends before enjoying a great night at the zoo.
 
 
William Land Park Amenity Guide
 
Community Support Network 
 
June 11, 2011 | 2:00pm-4:00pm
RiverLife Fellowship Hall
4401 A Street, Sacramento 95819
 
The DSIA wants to strengthen our sense of community and provide opportunities for parents and grandparents to share, children to form relationships, and siblings to bond.
 
ACTIVITIES
  • Music, Art, and other activities for children with Down syndrome (and their siblings) will be hosted by volunteers
  • Karaoke for teens and adults with Down syndrome (and their siblings) will be hosted by volunteers
BREAKOUT SESSIONS
  • Special Needs Trusts & Conservatorships: local attorney Trevor Stapleton will provide an overview of special needs trusts and conservatorships, and answer your questions.
  • Parents’ Breakout Sessions: for those who prefer to attend a sharing session, these sessions give parents an opportunity to discuss topics important to them. Sessions are broken out based on the age of the child with Ds.
  • Dads’ Breakout Session: for those dads who’d like to meet other dads, this session will give them an opportunity to meet each other, discuss topics important to them as fathers, etc.
     
The DSIA’s Community Support Network is for the whole family! 

Join us for an opportunity to connect, socialize, share, and enjoy educational opportunities for the entire family! For more information contact DSIA at
916-658-1686 or info@downsyndromeinfo.org.
 
Music Therapy Summer Groups!!
Please join us this summer!
 
 
Music To Grow On is Now Offering Both Private and Group Sessions for All Ages  
Music Therapy is the specialized use of music by a credentialed professional in order to achieve measurable, non-musical outcomes in communication, cognition and learning, psychosocial adjustments, motor and sensory processing. Board Certified Music Therapists use musical experiences tailored to each individual’s needs including singing, music and movement, instrument playing, and music listening to assist children in reaching their fullest potential.

Music To Grow On provides both group and individual music therapy to individuals of all ages. To visit their website click on the logo above. If you are interested in forming or joining a group, beginning individual therapy sessions, or would like more information, please contact Bessie Barth at
(916) 383-6100 or bessie@musictogrowon.net.
 

 
 
Music Therapy Services - Summer Groups 
Groups begin the 3rd week of June and run through the third week of August!
 
Music Therapy groups will focus on increasing verbal and nonverbal communication skills, focus of attention and attention span, social skills, and address sensory needs.
 
Clients will be placed in groups according to their age and needs and groups will not exceed 6 people.  The groups will all be led by Sarah Quinney, MT-BC, NMT and assisted by a colleague who has over 6 years of experience working with children on the Autistic Spectrum.
 
Location: Maria Montessori Charter Academy in Rocklin off of Wildcat Blvd
 Cost for the entire summer (10, 35-40 min sessions) is $250 per client
 with a family discount available.
 
Final location and exact dates will be finalized very soon!
Please do not hesitate to call or email with any questions or concerns.
Thank you!!
Sarah Quinney, MT-BC, NMT
Owner, Music Therapy Services
(916) 792-2908, sqmusictherapy@gmail.com, www.sqmusictherapy.com
 
 

 
Carly Litvik Music Therapy Services
Music Therapy is an established healthcare profession in which the focused use of music by a Board Certified Music Therapist elicits measurable, non-musical outcomes in the areas of communication, language development, cognition, sensory processing, motor planning and development, social/emotional needs, and wellness.  A Music Therapist addresses these areas through a variety of interventions that include, but are not limited to therapeutic singing, movement to music, structured and improvisational instrument play, musical games, lyric analysis, and song writing.
Carly Litvik Music Therapy Services offers in-home individual and group music therapy services to children of all ages and abilities.  She also offers regular and adapted music lessons on the guitar and saxophone.  Carly has had extensive experience working with children of varied abilities in the Sacramento area and loves to use music as an outlet for children and adults to thrive and succeed.
If you are interested in starting or joining a group, starting individual services or lessons, or would like more information, please contact Carly at 724.493.9635 or at musicwithcarly@gmail.com.
Also check out Carly Litvik Music Therapy Services on Facebook!
 
SOUTHSIDE PARK 5 YEAR ANNIVERSARY 

 An opportunity for children of all ages to interact and socialize with new and old friends.
  • An accessible playground whee children with and without disabilities can play alongside each other.
  • Families will be able to get together to socialize, share experiences, network, and learn about the local resources available.
  • Healthy snacks and drinks will be provided.
  • Live Music from Music To Grow On, Face Painting, Games and More... ALL FREE 
 Saturday June 11 | 10:00am -1:00pm
 
 
 
 CLICK HERE for more information
 
 
 
 
Lose The Training Wheels Camp 
Monday - Friday June 20-24  

Lose The Training Wheels™ is more than just a bike-riding program. For many children with disabilities, it’s a seemingly impossible task they can typically master in less than a week’s time. Within days of learning to ride, many children exhibit independent behaviors for the first time ever. This achievement, in turn, creates a gateway of opportunity, helping them gain assurance and self-reliance in many other aspects of their lives. 


Questions: Brian Berg, Camp Director:
 lttw@familysoup.org or (530) 682-0036
 
 
                                                      
CELEBRATING 10 YEARS--ENJOY 25% SAVINGS!
 
In May 2001, it all came together: the launching of our website and the publication of my first book, Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities. Other books have followed, along with a variety of products that promote new ways of thinking, and over 150 free articles on our website.
 
Our small, family-run business is eternally grateful to you: our customers, newsletter subscribers, and visitors to our site. We wouldn't be here without your interest and support, so THANK YOU, THANK YOU, THANK YOU!
 
In appreciation, we're offering 25 percent off everything in our online store from today through June 14, 2011 (and that date happens to be our 31st wedding anniversary!). Visit www.disabilityisnatural.com/shop today for our life-changing books and DVD, posters, magnets, note cards, bookmarks, sticker sheets, badges, and T-shirt transfers. And enjoy the 25 percent savings: enter code 10 Years while you're shopping.
 
Again, thanks for your continued interest and support--we appreciate you!
 
CLICK HERE FOR FULL NEWSLETTER
 
 
39th Annual Convention Template Header 1
 
The long Memorial Day weekend marks the "unofficial start of summer", so we're sure there will be loads of cook-outs, pool parties, and time to hang out with friends and family. We hope you have a safe weekend as we remember those who have given their lives in military service to our country.
 
If you are also using this weekend to finalize your summer plans, we want to remind you that our convention is just 10 weeks away!
 
YOUTH & ADULTS CONFERENCE / IMPORTANT!
The Youth & Adults Conference is filling up, and registration will close for this portion of the convention when capacity is reached. We anticipate this will happen soon -- prior to the June 24 registration deadline. Please don't delay and risk disappointing your self advocate. Click here to learn more about the Y & A Conference and how to register your self advocate.
 
SELF ADVOCATE BOARD NOMINATION DEADLINE
Is this the year your self advocate was considering a run for the NDSC Board of Directors? The deadline for nominations is NEXT WEEK, on June 1st. Click here for more information and to download the nomination forms.
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This is a reminder that this month, the NDSS affiliate webinar will be Respiratory Concerns in Children with Down Syndrome with Dr. Paul Moore, Pediatric Pulmonologist at Vanderbuilt University Hospital.
 
Respiratory concerns contribute to ongoing health issues in nearly 2/3 of children with Down syndrome and are the most common cause for hospitalization. Despite the frequency of respiratory issues in this population, the factors specific to Down syndrome that impact disease may not be fully appreciated. In the webinar, Dr. Moore will review the most common respiratory illnesses in children with Down syndrome and explore concerns specific to Down syndrome that impact respiratory disease.
 
Please join us on Thursday, June 2nd at 12pm ET. Space is limited. Reserve your Webinar seat now at: https://www2.gotomeeting.com/register/452463635.
Slides from the presentation will be posted to www.ndss.org. During the webinar there will be time for Q and A and open discussion on any topic. Please feel free to submit questions to NDSS in advance of the webinar. To submit a question, or suggest a topic for a future webinar, please email info@ndss.org.
 
Please feel free to share this webinar and the login information with your families and constituents, or anyone you feel may be interested in the presentation.

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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