Down Syndrome
Information Alliance
September 2 2011

Table of Contents
Community Support Network!
SAVE THE DATES for these Community Support Network programs in 2011.

Saturday, Sept 17
2-4pm
Saturday, Dec 10
2-4pm
 
River Life Church,
4401 A St.
Sacramento, CA
For more information contact the DSIA at 916-658-1686
Step Up for
Down Syndrome
 
SAVE THE DATE!
October 23, 2011
 
 
for more information
FREE Capitol Airshow Kids' Day! 

A special day for DSIA families and UC Davis Children's Hospital patients only! This event is closed to the public, and provides FREE admission to a preview of the California Capitol Airshow.
 
Catch the show without the HUGE crowds...
and enjoy the free food vendors!

Friday, September 92011
11a– 4pm
(food available after 12noon)
Mather Airport 
 
Please RSVP no later than Tuesday, 6 September by calling (916) 734-9013 or emailing specialevents@ucdmc.ucdavis.edu 
Special Olympics at DSIA's 
Community Support Network!

Come out to meet other families, let children enjoy music and art activities, and to learn about the Special Olympics!

Saturday, 17 September | 2-4pm
River Life Covenant Church
4401 A Street, Sacramento, 95819
 
In addition to the activities for children and adults with Down syndrome (and their siblings!), DSIA is bringing in a  guest speaker from the Special Olympics of Northern California! The speaker will provide an overview of the opportunities in our area, discuss how you can get involved, and answer your questions.  
 
Parent Breakout Sessions will run simultaneously for those who prefer to attend a sharing session. These sessions give parents an opporunity to discuss topics important to them. Sessions are broken out based on the age of the child with Ds.

NEW! Spanish-language Breakout Session: DSIA ahora tiene una sesión en Español. Esta sesión se ofrece para cualquier familia de habla hispana que prefiera atender una sesión en español. 
Step Up for Down Syndrome with DSIA 
Sunday, October 23 | 9am-1pm
William Land Park, Village Green
 
Step Up for Down Syndrome is much more than just your average walk. It is the rallying point of our local Down syndrome awareness movement; a community coming together to raise funds and celebrate hope for the future. The money you raise will support education, advocacy, and local programs that enhance the quality of life for people with Down syndrome and their families. It’s an event for the young and young at heart. Whether you choose to roll, stroll, walk, or hang out and enjoy the festivities, there is fun for everyone!

Last year we raised over $45,000... this year help us raise $75,000 by registering today! 
 
The last day to be guaranteed a t-shirt with registration is Friday, 14 October 2011.
 
The last day to register online for the walk is noon on Wednesday, 19 October.
After that time you may register in person at the walk. 
 
The cut off date for team with the 'hightest donations' is noon on Saturday, 22 October. Prize will be awarded based on figures that day. But, you may continue to receive donations up through December 31, 2011!

CLICK HERE to register
  
Kick-Off Meeting &
Resource Fair
Community Advisory Committee (CAC),
Sacramento City Unified School District 
On September 20, 2011 the CAC is having their Kick Off Meeting & Resource Fair. The agenda for this event is for SCUSD families, teachers, and community to meet.  SCUSD Special Education team & CAC will introduce themselves and answer questions.  After all introductions we encourage everyone to mingle and get “educated”!  
 
 
Date: September 20, 2011
Time: 7:00pm
Location: Serna Building 5735 37th Ave.
 
The CAC is an advisory group to the Special Education Local Plan Area (SELPA) and is made up of parents, educators, administrators and other public members who are interested in working for students who receive special education services. We meet regularly during the school year and provide trainings on special education subjects of concern to parents, teachers and other community members who are interested in supporting children with special needs. The schedule and topics of the trainings are available on the SCUSD website or the Special Education Department.  Being a part of the CAC provides the opportunity to have input concerning district special education policy and attend trainings regarding issues of concern to families and educators.  The CAC is also a great way to meet other parents of students with special needs, an avenue to provide input to our administrators and a place to acquire new information that can help you help your child.
 
DSIA Survey for Teen/Adult Programs  
 
If you are a teen or adult with Down syndrome - or you are the parent of a teen/adult with Down syndrome - DSIA wants your feedback! 

Please take a few minutes to complete our survey... We would like to hear your ideas so we can begin to identify and develop activities that meet the needs of our teen/adult community.

Please keep in mind that other organizations (Access Leisure, for example) offer activities for adults with developmental disabilities, and DSIA does not want to duplicate those efforts. Rather, we are looking for your ideas to create new and exciting opportunities for our self-advocates!

Please complete this short survey to provide DSIA with your ideas for teen and adult activities.
 
Interested in Being a 
DSIA Board Member?

DSIA Seeking Nominations for
Self-Advocate Board Member
 
Are you - or do you know - a self-advocate interested in serving on DSIA's Board of Directors? We want your voice to be heard, and your ideas to help shape the future of DSIA! 
 
Board members must be at least 18 years of age and are required to attend monthly meetings. The Board meets the second Thursday of every month, from 6-8pm. 
 
Please email info@downsyndromeinfo.org for more information!
Self-Advocate & Sibling Panel 

Join DSIA's Panel Discussion on
November 5, 2011

DSIA would like to invite 8-10 self-advocates and siblings to share their experiences on growing up, going to school, having relationships, work, health issues, etc. There will also be a Question & Answer session with the audience.

Self-advocates are important members of our community. This is a great way to share your stories and experiences with the community, and for younger families to get to know you and learn from you!

Please contact info@downsyndromeinfo.org by September 30, 2011 if you are interested in being on the panel!
 
National Down Syndrome Society E-Newsletter
 
September 2011
 
The 2011 Toys"R"Us Toy Guide for  
Differently-Abled Kids® Has Arrived!     
 
For nearly 20 years, Toys"R"Us, Inc. has provided parents, caregivers and gift-givers with toy recommendations for children with special needs through the Toys"R"Us Toy Guide for Differently-Abled Kids®. This month, the company launched the 2011 edition of the Guide, featuring actress and philanthropist Eva Longoria on the cover alongside Elijah De La Cerda, a 5-year-old boy with Down syndrome from Fresno, California. Released annually, this complimentary resource is created with guidance from the National Lekotek Center, a nonprofit organization dedicated to making play accessible to children of all abilities. 

The Guide is available in Toys"R"Us® and Babies"R"Us® stores nationwide and online, in English and Spanish, atToysRUs.com/DifferentlyAbled

All items in the Guide are paired with icons to indicate which skills that can be developed during playtime. This year's edition offers more toys than ever before, selected for their ability to help kids build critical skills, including fine and gross motor, social, creativity, auditory, language and more.  The Guide also includes the "Top Ten Tips for Buying Toys" from the National Lekotek Center and "Safe Play Tips for Children with Special Needs."

DSIA will have copies of The Guide available for all interested families at the Step Up for Down Syndrome walk on October 23rd!
 
 
CLICK HERE for FUL NEWSLETTER
During the past nine months Angela has been very busy writing short stories. She has always been passionate about reading and enjoys acting out her favourite characters from the books she reads. What began as something to encourage her with writing, evolved into a much bigger project! Angela’s parents enjoyed her stories so much and realized that this recently developing ability with creative writing should be celebrated, so they decided to publish 20 of her best stories. What is more poignant to this story is that Angela has Down syndrome. 
 

The Adventures of Edmond and Martha – by Angela Bettoni
Angela has always been a keen reader, which has obviously had an impact on her imagination and creativity, so to draw on these skills and create her own stories, is truly inspiring for someone so young.
Editing the series of stories has been kept to a minimum, so as to give a true idea of her writing. The stories themselves are amusing due to her great sense of humor! Each chapter is preceded by a scanned page of the original handwriting. 
 
CLICK HERE to purchase 

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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