Down Syndrome Information Alliance
April 2011
Table of Contents
Community Support Network! 
SAVE THE DATES for these Community Support Network programs in 2011.
Saturday, June 11, 2-4pm
Saturday, Sept 17, 2-4pm
Saturday, Dec 10, 2-4pm
River Life Church, 4401 A St., Sacramento, CA
For more information contact the DSIA at 916-658-1686
What your children without Down syndrome are thinking:
Sibling Issues
 
Saturday, April 16, 2011
  
LAST CHANCE! CLICK HERE TO RSVP  
 
"This is a great workshop - truly life changing for my family. It has completely eliminated any guilt I had for my other children about having a sibling with Down Syndrome. I learned that children that grow up with a sibling with a disability grow up to be more caring and nurturing adults. I also learned how to talk about Down syndrome to my children and give them the tools they need to talk to their peers about Down syndrome." Heather Prieto - mom to Gabby (9) and her five siblings.
 
 
  
Sibling Workshop
 
Brothers and sisters have opportunities - through interactive exercises, games, and role-playing scenarios - to learn with peers more about disabilities in an accepting and confidential environment. Siblings come away with more information, social connections with peers, and early lessons on advocacy.
  
For Parents and Professionals
 
9:00 am - 10:30 am: Ages 5-8
10:45 am - 12:45 pm: Ages 9-12
Cost: $20 per family; $35 for non-members
   
Through a series of interactive exercises, parents and professionals will explore what questions, needs, and concerns are often raised by children who have a brother or sister with Down syndrome. Participants will come away with practical answers to commonly raised questions.
 
2:00 – 3:30 pm: Parents/Professionals
Cost: $20 per family; $35 for non-members  
Cost is included when child enrolled in sibling workshop!
 
David P Meaney Education Center
10474 Mather Boulevard
Mather, CA 95655
 
CLICK HERE FOR DIRECTIONS
 
CLICK HERE TO REGISTER
 
 
Brian Skotko, M.D., M.P.P., a clinical fellow in genetics at Children's Hospital Boston, Massachusetts General Hospital, and Brigham & Women's Hospital, has dedicated his professional energies toward children with cognitive and development disabilities. In 2001 he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. Brian recently authored major research on how physicians deliver a diagnosis of Down syndrome to new and expectant parents. He has been featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s On Point, and ABC’s Good Morning America.
Dr. Skotko and his colleague Sue Levine have lead all-day and multi-day workshops for brothers and sisters who have siblings with disabilities across the country.
 
Do You Want to Train at Future Sibling Workshops? 
 
Dr. Skotko and Sue Levine have offered DSIA an opportunity to train interested older teens and adults (including parents) to run the sibling workshop in the future. That means DSIA can offer these workshops on a more regular basis at a much reduced cost. Unfortunately, parents who will have children attending the workshop in April 2011 will not be able to participate in the training as the trainees need to observe part of the workshop and parents. To ensure the workshops are a safe haven for children to be open and honest, their own parents may not observe the session. Also, be sure to note that the training requires a full day commitment on April 16th, and there is no cost.
 
If you are interested in being considered for the training, are able to make the commitment to doing a workshop at least once a year and will have the flexibility to work with DSIA's calendar please contact Heather Prieto at heather@downsyndromeinfo.org or 916-658-1686. The DSIA will notify those selected for the training by April 1st. Please reserve the date (April 16th) to be sure you are able to participate if chosen.
 
NDSS Affiliate Webinar: I'm Down With You
 
This month, the NDSS affiliate webinar will be An Inspired Journey To Raise Awareness For People Living With Down Syndrome with Jagatjoti Khalsa, author of I'm Down With You, and Sarah Schleider, NDSS VP of Marketing and Communications. Hear the story of Jagatjoti Khalsa's inspired journey in creating I'm Down With You and learn how you can adapt and use the photographic images in your local communities to support advocacy efforts.
 
Please join us on Wednesday, April 13th at 12pm ET.  Space is limited.  Reserve your Webinar seat now at:  https://www2.gotomeeting.com/register/807693651
 
Slides from the presentation will be posted to www.ndss.org.   During the webinar there will be time for Q and A and open discussion on any topic.  Please feel free to submit questions to NDSS in advance of the webinar.  To submit a question, or suggest a topic for a future webinar, please email info@ndss.org
 
Please feel free to share this webinar and the login information with your families and constituents, or anyone you feel may be interested in the presentation.  
Registration is now open for the 39th Annual NDSC Convention! 
 
 This August, our annual convention will be Deep in the Heart, in San Antonio, TX! Parents and professionals will have an opportunity to learn from the best speakers from around the world and share experiences with one another.  Teens and adults with Down syndrome will be empowered at the Youth and Adults Conference. And siblings of individuals with Down syndrome will have a chance to learn and be heard at the Brothers and Sisters Conference. This year, we'll be offering Kids' Camp, a supervised place for the younger kids to gather while the rest of the family attends conference workshops. It truly is like a giant family reunion! 
 
CLICK HERE for more information
 
Down Syndrome Affilates In Action: Newsletter
 
Dreams Become Reality for Louisville
 
In March, members of Down Syndrome of Louisville (DSL) met at the building site of their new LifeLong Learning Center for a "Dream Party".  The attendees were DSL LLCinvited to write their dreams for the future of DSL on the interior framing walls of the building as this 'dream' becomes a reality for the organization.  The  $3.7 million Capital Campaign began in July 2007 with an amazing $1.5 million dollar gift by Kosair Charities, a long time funder of DSL's programming. The endorsement of such a prominent organization led to DSL's securing a prestigious challenge grant from James Graham Brown Foundation.  That grant, in turn, stipulated that DSL raise $1.5 milllion by June 2010 to receive $500,000 for the Capital fund.
 
CLICK HERE to read the full newsletter

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747
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