Down Syndrome
Information Alliance

April 2012
Table of Contents
UPCOMING EVENTS
  
Parent Wellness 
Friday,
April 27,
7-9pm

Open House MIND Institute
April 28, 
1-4pm

Dance Lessons for Teen/Adult Self-Advocates
Saturday, 
May 5,
5-9:30pm

Picnic and Play
May 19, 
10am 

Picnic/Dream Night at the Sacramento Zoo 
Friday,
June 1, 6pm 
 
to see full event descriptions!
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DSIA Events in April 

Parent Wellness

Friday, April 27, 7PM-9:30PM
 
Promoting Health and Wellness through Yoga and Reflective Writing. Come meet other parents and professionals to learn ways to keep you and your family healthy. Please join Fumiko Takatsu and Terri Wolf for a fun, restorative and thoughtful night.
 
FUSION Yoga Studio | 2310 Fair Oaks Blvd., #C2 |Sacramento, CA 95825
 
Please wear comfortable clothes. Space is limited! This event is for adults only, no childcare is provided.
 
Please RSVP to WarmLine Family Resource center 916-922-9276 or (800)-660-7995 by Wednesday, April 25
 
CLICK HERE for directions.
 
CLICK HERE for more information.
 


Family Open House
at the
UC Davis MIND Institute

Saturday, April 28, 1PM-4PM
 
Entertainment, Activities, Food and MUCH MORE!
 
UC Davis MIND Institute | 2825 50th Street, Sacramento, CA 95817
 
CLICK HERE for more information.
 
CLICK HERE for directions.

DSIA Events in May 
 
Dance Lessons for
Teen/Adult Self-Advocates

Saturday, May 5
 
Sign in: 6:30pm
Lessons and dance: 7-8:30pm
 
Want more opportunities to socialize with other self-advocates? Want to learn various forms of dance? Come join other self-advocates to enjoy a night out dancing with a professional dance instructor!
  
Sierra 2 Center – Studio 2 | 2791 24th Street, Sacramento, CA 95818
  
Please CLICK HERE to RSVP.
 
CLICK HERE for directions.
  

 
Picnic and Play Date 
 
Saturday, May 19, 10am-12pm
  
Join other families for a morning of play! 
 
Bertha Henschel Park | 160 45th Street, East Sacramento, CA 95819 
 
CLICK HERE for directions.
 

Life and learning doesn’t stop after high school and we want to help these amazing individuals with Down Syndrome reach their highest potential.

Our goal at Ruby’s Rainbow is to grant scholarships to adults with Down Syndrome seeking postsecondary education, enrichment or vocational classes who feel that higher education is the right choice for them.  

It is our mission to provide information and resources to guide them to an appropriate program and keep track of their progress. We hope this will inspire others to go for their dreams!

CLICK HERE to learn more


Please join NDSS for our April webinar, "Prospects for Improving Cognition in People with Down Syndrome.” The presentation will be led by Dr. Omar Khwaja, of Roche, a research-focused healthcare company.  The webinar will focus on the neurobiology of cognition in Down syndrome and how pharmaceutical treatments to potentially improve cognition for individuals with Down syndrome are discovered and developed. 
  
The presentation will be Thursday, April 19 at 12:00 PM ET.   
  
There will be time to ask questions of the speaker during the webinar and slides from the presentation will be posted the NDSS website
  
Feel free to share this email with anyone you feel may be interested in the presentation. 
  
Click here to register for the webinar.   
  
Contact Vanessa Quick, Manager of Education and Programs, at vquick@ndss.org or 212-763-4364 with any questions about the webinar.
  
Annual Planning Meeting 2012/2013 
 
Community Advisory Committee for Special Education
Sacramento City Unified School District

April 24, 2012


Time:    6:30pm - 8:30pm
Place:    SCUSD, Serna Center, 5735 47th Ave., Sacramento


Childcare is not available for this meeting. 

Don't miss our 2012/2013 planning meeting! This will be an opportunity for the community to discuss needed special education trainings for the next school year. All ideas are valued and considered. Note: In 2011/2012 CAC trainings included: the IEP process, personal safety/bullying prevention, executive functioning, accommodations and modifications, estate planning/special needs planning, speech/language and sensory issues and strategies in the home; and self-advocacy. 

SCUSD CAC meetings and trainings are open to everyone in the community. RSVP is not necessary but is highly recommended to ensure adequate meeting space: email Espi at cac@scusdcac.org.


Please take a moment to fill out the online survey: 
** ONLINE SURVEY **

The CAC relies heavily on feedback from the community - please take a few moments to complete a short survey about special education training and issues to address. 
We appreciate your help and support!


Down Syndrome...
What does that extra chromosome do? 
Could development be normalized if it's addressed medically?
...Have you been looking for OPTIONS to help your child, but didn't know where to go?
Now you do...
 
 
Down Syndrome - Thursday, May 24th at AutismOne in Lombard, Illinois

The dawn of a new decade!  Jane Winans, parent of a thriving child with Down syndrome, shares her journey and discusses biomedical options she used for her daughter. Hear from 9-year old, Lydia, in this moving opening session designed to enlighten and empower parents. Click to see video 1 and video 2 of Lydia.
Why talk about Down syndrome at an Autism Conference?  Parent-researcher, Laurette Janak, relates similarities in health histories between DS and ASD (Autism Spectrum Disorder) families and how we can best learn from them. Woven into the discussion will be valid, scientific reasons for trying biomedical options.
Trisomy 21: Understanding the Problem  Dick Deth, PhD shares an easy-to-understand overview of some of the major issues facing our children including the methylation cycle, the Alzheimer's connection, oxidative stress and the effects of GABA overexpression.
Biomedical Basics: Where to Begin  Dr. Norman Schwartz explains how optimizing nutrition, exploring supplementation, monitoring the thyroid, utilizing lab results and avoiding environmental toxins are the building blocks needed to form a solid foundation upon which your child may flourish.
What's Next? Exploring Options Dr. Anju Usman will explain the next level of biomedical information including optimizing a healthy gut-brain connection, and nutrients for brain repair and neurogenesis, which is the brain's ability to create new brain cells and new connections.
Holistic Spotlight: Speech Learn from Jill Rabine, Speech Language Pathologist, how proper nutrition, medical intervention, supplementation and oral motor and communication exercises must all be on track to pave the way to excellent speech.
The Neurodevelopment Aspect Alison Wimmer will explain the fundamentals of neurodevelopment and why it works beautifully with the holistic approach to DS therapy giving our children the opportunity to succeed beyond our expectations.
The Future: Choose Your Own Adventure  Sessions end with each parent's exciting new journey before them. Cheryl Greene will share her time-saving strategies to help parents fit everything in their busy schedules. Andi Durkin (parent to Jett) will unveil great new resources to support parents as they explore and implement OPTIONS for healthier children including a new Foundation and website with a parent database. The floor will open for questions and answers. 
 
Renew Your DSIA Membership... 
or Join for the First Time!

Individual/family memberships only $35 per year!
 
Member benefits include:
  • DSIA's monthly eNewsletter, plus additional updates about upcoming events and activities
  • access to special events (like the Capitol Airshow in 2011)
  • free social events and educational workshops with expert guest speakers that our community requests
  • reduced fees and potential scholarships for those activities that require a fee (like the reduced fee for SunSplash and the member scholarships for the oral motor clinic)
  • and much, much more!
Your membership not only benefits you, but it benefits the Down syndrome community more broadly. You support DSIA's mission, our vision, and provide a member base that tells our community (educators, medical professionals, families, etc.) that we are doing important work.

In previous years, memberships were valid January 1 - December 31. Now, DSIA memberships are valid for 365 days from the day you join/renew. And after you sign up in 2012, you will receive a reminder approximately one month before your membership expires, with a link to renew online. How's that for easy?!
 
Click here to join/renew!


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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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