Down Syndrome
Information Alliance

May 2012
Table of Contents
UPCOMING EVENTS
 
Play Date @ the Park 
Saturday, May 19, 
10am 

Picnic/Dream Night at the Sacramento Zoo 
Friday, June 1,
5pm 

Family Fun at
Cal Fit 
Saturday, June 9, 4-7pm

Pizza Night for Adults with Ds
Friday, June 22, 5pm
 
to see full event descriptions!
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Access Leisure 
Events
DSIA Events in May 
 
 Play Date at the Park  
 
Saturday, May 19
10am-12pm
  
Join other families for a morning of play!

Bertha Henschel Park | 160 45th Street, East Sacramento, CA 95819

CLICK HERE for directions
DSIA Events in June 
 
Picnic/Dream Night
at the Sacramento Zoo 
 
 Friday, June 1
5:00-6:30 Picnic (come anytime!)
5:30 DreamNight Opens
 
DSIA will host a picnic at William Land Park (GA9) prior to the Sacramento Zoo’s DreamNight event! Bring your own picnic dinner for your family, and meet with other DSIA families in the park to eat and socialize, then head in to the Zoo for a special night for families with children with disabilities.

William Land Park – AREA GA9 | 3800 W Land Park Dr., Sacramento, CA 95822
 
CLICK HERE for directions.
 
CLICK HERE for a map of the park.
 

 
Family Fun Day
at California Family Fitness

Saturday, June 9
4-7pm

 
This afternoon promises to be full of fun and family! Join us for basketball, soccer, rock wall climbing and bounce wall bouncing!

California Family Fitness – Rocklin | 2511 Warren Drive, Rocklin, CA 95677
 
CLICK HERE for directions.
__________________________________________________________________

DSIA Pizza Night For Adults with Down Syndrome
and their families

Friday June 22
5pm

 
This night is for adults with Down syndrome, ages 18 and up and their parents.

Cost: $5.00 per person. Price includes drink, pizza and salad.
 CLICK HERE to pay now! 
 
Straw Hat Pizza | 2929 Mather Field Road, Rancho Cordova, CA 95670
  
CLICK HERE for directions.
Interested In Sharing Your Story? 
 
DSIA wants to shine the spotlight on local self-advocates! If you are a self-advocate and would like to share a story about your accomplishments, where you work, about school, travel, sports, or any other activity you enjoy, please let us know! We also welcome stories written by parents and siblings that highlight both the outstanding accomplishments and the everyday lives of self-advocates.
 
Contact us to at info@downsyndromeinfo.org to learn more, or you can email your story to us for consideration. Selected stories will be featured on DSIA's Website!

 
FREE TRAINING & FREE CHILDCARE!
Building Advocacy
at home, community & school 

for parents, teachers, students & community

Date: Tuesday, May 15, 2012
Time: 7:00pm to 8:30pm
Location:  The Serna Center, 5735 47th Ave., Sacramento
Speaker:  Mark Starford, Board Resource Center & David Lopez, Alta California Regional Center

CLICK HERE for more information
                                 
 
Please join NDSS and D.A.D.S. National for our May webinar, "How You Can Help Us Pass the ABLE Act Today” 
Tuesday, May 22nd @ 7 PM EST
Click here to register for the webinar 
The Achieving a Better Life Experience (ABLE) Act (S. 1872/HR 3423), when passed into law, will provide individuals with Down syndrome and their families the same types of flexible savings tools that all other Americans have through college savings accounts, health savings accounts, and individual retirement accounts. The Down syndrome community has a real chance at getting the ABLE Act signed into law this year but we still need your help!  
Please join us for this webinar and learn how you can do your part as an advocate and Down syndrome organization to help NDSS, D.A.D.S. National, and many more organizations pass this important bill. Your participation in this webinar will prepare you with the following: 
1)      Understand the importance of the ABLE Act for the Down syndrome community
2)      Learn three actions you can do right now to help us pass the ABLE Act
3)      Learn you can encourage others to act to pass the ABLE Act
Feel free to share this email with anyone you feel may be interested in the presentation. 
Webinar Speakers:
Steve Beck, Board Member, NDSS; Vice President, Down Syndrome Association of Northern Virginia
Steve has worked on the ABLE Act for over five years over three Congresses. Beck is leading a national effort of more than ten national organizations to pass the ABLE Act into law. Beck is the father of 12 and 14 year old daughters, Natalie and Mary Rose. 10 year old Natalie has Down syndrome.
Joe Meares, Chair, D.A.D.S. National
Joe is an involved (and outnumbered) father of four girls. The youngest, Peyton, 14, has Down syndrome. Meares believes certain responsibilities naturally fall on the shoulders of fathers and advocacy IS one of those responsibilities. Meares organized the first D.A.D.S. meeting in 2002 and anticipates reaching 60 D.A.D.S. groups in 2012; all built on support, fellowship and action.
Sara Hart Weir, Vice President, Advocacy & Affiliate Relations, NDSS
Sara represents NDSS on Capitol Hill in Washington, D.C. Weir also leads the work of the NDSS advocacy and affiliate program. Sara's passion of advocating for all people with Down syndrome and their families stems from her friendship with a young woman from Kansas.
Darin Yoder, National Public Policy Advisor, D.A.D.S. National
Darin serves at the D.A.D.S. National public policy advisor. Yoder is also the Executive Director of one of the most progressive agencies in the United States serving people with Developmental Disabilities. Darin is from Syracuse, New York and lives with his wife, Amy, and three of their five children. Darin’s two youngest children, CJ, 13, and Grace, 10, have Down syndrome.  
For more information about the ABLE Act, please use the following resources:
Contact Vanessa Quick, Manager of Education & Programs, at vquick@ndss.org or 212-763-4364 or Sara Weir, Vice President, Advocacy & Affiliate Relations, atsweir@ndss.org or 202-680-8867, with any questions about the webinar.
 
 CLICK HERE for more information
 
It's official!  Emmy nominated, co-creator and star of Signing Time, Rachel Coleman will be performing Saturday, August 25th, 2012 in Roseville, CA to benefit the Signing Time Foundation!  
If you love Signing Time, don't miss this event that is sure to make memories to last a lifetime!  There will be time to meet and greet with Rachel and Hopkins for photos and autographs and an amazing concert where Rachel will perform some all-time favorite songs from Signing Time.  All events will be interpreted in American Sign Language for our Deaf and Hard of Hearing patrons. 

This show sold out last year, so don't miss out this year! Get your tickets as soon as possible! Tickets are now on sale and donations are being accepted HERE!  

Signing Time products will be available through Christie O'Neill for you to purchase at the concert or can be pre-ordered from Christie and picked up at the concert. Shop the store by clicking HERE! 
Forever Friends is a fun and exciting show for kids ages 2-7 that brings a message of friendship, love and  inclusion for all kids. It stars Parents  Choice Gold Seal Award winners Chris Burke (Corky Life Goes On) with Joe and John DeMasi.
Join Chris, Joe and John, their feline friend Feedback and their Talking Computer Newton as they sing along, sign along, celebrate abilities and teach kids that we are all more alike than we are different. This 47 minute DVD includes the episodes "Shapes" and "Too Big, Too Small."

Forever Friends is a must have for parents, teachers, grandparents, YMCA, Head Start, pre-school programs, kindergarten and first grade classrooms, disability support groups and everyone who believes in the values of inclusion and friendship for all of our kids.  
 
"My class loves it! What a great way to introduce my first graders to children with disabilities. This DVD should be in every pre-school and first grade classroom in America!" Fran Losardo- 1st grade teacher

 "The songs are GREAT!" Rachel Coleman- Signing Time, PBS

To order or learn more, CLICK HERE
Fathers' Perspectives on Raising Young Children with Down Syndrome 
 
Courtney Williams, Graduate Assistant - Department of Counseling, Indiana University of Pittsburgh and mom to a 2 year old daughter with Down syndrome,  is working with Dr. Laura Marshak and Dr. Kirsten Murray on a study aimed to better understand the adjustment of fathers of children with Down syndrome during the first three years after their children’s births. Dr. Marshak is a professor at Indiana University of Pennsylvania, co-authored Married with Special Needs Children and has spoken at numerous Down syndrome support groups. Dr. Murray teaches at the University of Montana and has extensive knowledge in marriage and family counseling.
 
 
If you would like to volunteer to participate in this very valuable study that will help us learn more about father's personal experiences during this time of their lives, please CLICK HERE
 
Renew Your DSIA Membership... 
or Join for the First Time!

Individual/family memberships only $35 per year!
 
Member benefits include:
  • DSIA's monthly eNewsletter, plus additional updates about upcoming events and activities
  • access to special events (like the Capitol Airshow in 2011)
  • free social events and educational workshops with expert guest speakers that our community requests
  • reduced fees and potential scholarships for those activities that require a fee (like the reduced fee for SunSplash and the member scholarships for the oral motor clinic)
  • and much, much more!
Your membership not only benefits you, but it benefits the Down syndrome community more broadly. You support DSIA's mission, our vision, and provide a member base that tells our community (educators, medical professionals, families, etc.) that we are doing important work.

In previous years, memberships were valid January 1 - December 31. Now, DSIA memberships are valid for 365 days from the day you join/renew. And after you sign up in 2012, you will receive a reminder approximately one month before your membership expires, with a link to renew online. How's that for easy?!
 
Click here to join/renew!


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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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