July 2013
Table of Contents
Upcoming Events
 
Picnic and Playdate @ Bertha Henschel Park, East Sacramento
Saturday, July 27 10am

After NDSC Conference Sharing Session
Saturday, August 3 11am-2pm
 
Family BBQ and Camp
Sunday, August 11 2pm
 
Picnic and Playdate @ John Kemp Park, Folsom
Saturday, August 17
10am

Active 20/30 Club Special Needs Picnic @ Fairytale Town 
Saturday, September 7 
 
Special Kids Preview California Capital Air Show @ Mather Airport
Friday, October 4 
 
2nd Annual Walking Angels Fashion Show & Silent Auction benefitting DSIA
Saturday, October 12 | 3pm 
 
Step Up for Down Syndrome Walk
Sunday, October 20 | 9am

 
Wacky Tacky Indoor Exploration and Play
 
Monday, November 25 | 9 – 11am
 
 
Pancake Breakfast with Santa
 
Saturday, December 7 | 10am
 
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DSIA JULY EVENTS 

 
New Parent Support Group
Thursday, July 18 |6:30 pm 
Come meet other parents in a safe and comfortable space to discuss all aspects of being a parent to a baby with Down syndrome  - joys and challenges alike! Bring your questions – everything is welcome – or come to listen and share with others. Make friends and develop a support system for the days and years ahead.
A DSIA Parent to Parent Mentor will guide each meeting, answer any questions and offer support to new families.
This support group is for families who have a prenatal diagnosis of Down syndrome or who have a baby, 0-18 months old with Down syndrome. Please do not bring other children.

Elk Grove Library
8900 Elk Grove Blvd., Elk Grove
OR
American Legion Meeting Room *
523 Bush Street, Woodland

CLICK HERE to download, print and share the PDF flyer for the New Parent Support Group
*Indicates Spanish speaking DSIA Parent Mentors will be Moderating the Group also.


 
Picnic and Playdate @ Bertha Henschel Park, East Sacramento
Saturday, July 27 | 10am

Bring a picnic for your family, be prepared to play in the beach entry toddler pool, meet DSIA families and have some fun at this great park in East Sacramento.

CLICK HERE for more information about Bertha Henschel Park
DSIA AUGUST EVENTS 

 
After NDSC Conference Sharing Session
Saturday, August 3 | 11am-2pm
 
Join DSIA families that just attended the NDSC National Conference in Denver. Parents will be able to share with others what they have learned at this years conference! Be prepared to take notes and gather a lot of information!
 
This is an adult only event.
 
Sierra 2 CenterRoom 10  | 2791 24th Street, Sacramento, California 95818
 
CLICK HERE to RSVP
 
 
 
Teen and Adult Dance Lessons
Saturday, August 10 | 6:30pm
 
Sign-In: 6:00pm
Lessons and Dance: 6:30-8:00pm
 
Sierra 2 Community Center, Studio 3 | 2791 24th Street, Sacramento CA 95818

$10/lesson | $5/DSIA Member

CLICK HERE to reserve your lesson

CLICK HERE to become a DSIA Member. Memberships are $35 and good for 365 days. Confirmation of membership and discount codes will be emailed within 24 hours.

CLICK HERE to download, print and share the PDF flyer for the Dance Lesson series
 
 
Family BBQ
Sunday, August 11 | 2pm
 
Come join DSIA for a BBQ and potluck at Nelson’s Grove near Woodland.
Bring a side dish to share.  Sodas and water will be provided due to a large donation from Pepsi and Rite Aid.
Come enjoy the fun!  We hope to have a water feature bounce house, miniature ponies sponsored by TROTR, and Music Matt, not to mention yummy S’mores, friendship and fun!  Hope you can make it.

CLICK HERE to learn more about Nelson’s Grove.

CLICK HERE to RSVP

CLICK HERE to download, print or share the flyer for this event 
 
 
 
New Parent Support Group
Thursday, August 15 |6:30 pm 
 
Come meet other parents in a safe and comfortable space to discuss all aspects of being a parent to a baby with Down syndrome  - joys and challenges alike! Bring your questions – everything is welcome – or come to listen and share with others. Make friends and develop a support system for the days and years ahead.
 
A DSIA Parent to Parent Mentor will guide each meeting, answer any questions and offer support to new families.
 
This support group is for families who have a prenatal diagnosis of Down syndrome or who have a baby, 0-18 months old with Down syndrome. Please do not bring other children.
 
Uc Davis MIND Institute
2825 50th St., Sacramento, CA 95817
OR
American Legion Meeting Room *
523 Bush Street, Woodland
 
CLICK HERE to download, print and share the PDF flyer for the New Parent Support Group
*Indicates Spanish speaking DSIA Parent Mentors will be Moderating the Group also.
 
 
Picnic and Playdate @ John Kemp Park, Folsom
Saturday, August 17 | 10am
 
Bring a picnic for your family, be prepared to play in the water area, meet DSIA families and have some fun at this great park in Folsom.

CLICK HERE for more information about John Kemp Park
Step Up For Down Syndrome 

 
This is your big chance to give back! DSIA needs your help raising funds to continue our programs and outreach into 2014 and beyond.
 
Your participation not only increases awareness and celebrates hope, it also ensures that DSIA will be able to continue to provide support, education, resources, and much-needed (and loved!) events to our community.

CLICK HERE to learn more about the Step Up Walk.

CLICK HERE to being the registration process.
 
NDSCNDSS Logo

June 27, 2013
National Down Syndrome Congress 
NDSC and NDSS Action Alert 
Have You Contacted the Governor of Maryland?

The Saylor family and the Down syndrome community are still in the dark about what happened the evening of January 12th, 2013, when one of our own, Ethan Saylor, a 26-year-old man with Down syndrome, died while being improperly restrained by off duty law enforcement officers.

Please read our Action Alert and contact the Governor by phone or email right away!
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THE REALITY OF DS RESEARCH


It's harsh to see that DS researchers lack commonplace tools and capabilities necessary to advance their work to the next level. Without them, there can be no progress. 

 
HEADLINE NEWS
 
LA Times
A federally approved drug already being inhaled by asthma patients may make mice with Down syndrome smarter, according to a new study. Researchers chose to test the widely manufactured bronchodilator, Formoterol, because it also acts on a brain chemical crucial to memory-based learning. Earlier research had shown a similar compound successfully stimulated production of that brain chemical, called a neurotransmitter, which then improved neuron formation and cognition in mice that had been genetically altered to show symptoms of Down syndrome.


Alzheimer's drug to be tested on Down syndrome patients
NWA Online
Major drugmaker Eisai Co. plans to start clinical tests to see whether a drug for Alzheimer's disease is effective in treating symptoms of Down syndrome seen in adulthood, according to informed sources. If the drug is proven to curb a deterioration of the ability to conduct daily activities seen in adult Down sufferers, it will become the first medicine used to treat the condition, significantly enhancing their quality of life. The tests of the drug Aricept, which has been used to treat Alzheimer's since 1999, will be conducted from August at 10 hospitals nationwide.


DSAIA Member Notes Decrease in Birth Rates
DSIA
How many 2013 births has your group welcomed so far this year?  This question is prompted by some rather concerning news. Martha Ostendarp, who serves as Down Syndrome Association of Greater Cincinnati's (DSAGC) Director of New and Expectant Parent Support, reported in a recent Informed Decision-Making Task Force (IDMTF) call that she had not seen numbers like 2013's in her eight years with the DSAGC.  Ostendarp shared that the DSAGC typically welcomes on average two to three new births each month.  However, in 2013, they have had only two.


Common Genetic Architectures Of Down Syndrome
Science 2.0
In a study conducted by Professor Stylianos Antonarakis' group from the Faculty of Medicine of the University of Geneva (UNIGE), researchers have identified the genomic variations associated with trisomy 21, determining the risk of congenital heart disease in people with Down syndrome. The targeted and specific study of chromosome 21 revealed two genomic variations, which, in combination, are the hallmark of hereditary cardiac deficiency.


Down syndrome neurons grown from stem cells show signature problems
U. of Wisconsin-Madison News
In new research published this week, Anita Bhattacharyya, a neuroscientist at the Waisman Center at UW-Madison, reports on brain cells that were grown from skin cells of individuals with Down syndrome. "Even though Down syndrome is very common, it's surprising how little we know about what goes wrong in the brain," says Bhattacharyya. "These new cells provide a way to look at early brain development."
 
DownSyndrome Achieves
P.O. Box 1596 | Dublin, OH  43017
www.dsAchieves.org


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Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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