Down Syndrome Information Alliance
August 2014
4th Annual DSIA BBQ, Potluck, and Campout!   
August 10 | 4pm
Nelson’s Grove, 15285 County Road 99E, Woodland, CA 95695
 
**CHECK YOUR DIRECTIONS AHEAD OF TIME – YOU MIGHT NOT HAVE GPS or CELL SERVICE THE CLOSER YOU GET TO NELSON’S GROVE**
 
There will be a water feature for the kiddos to play on – bring towels, extra clothes, swimsuits, etc…

CLICK HERE to RSVP.

Teen and Adult Self Advocate BBQ
August 16th | 2pm 
 
Please bring a food item to share (use the letter of your last name to see what you need to bring)
A-F: Appetizers
G-L: Drinks
M-Q: Main Dishes
R- Z: Sides, Salads
 
 
Email Magdeline at magdeline@downsyndromeinfo.org for more information.
Step Up 
10th Annual Walk & New 5K Run!

Sunday, November 9
William Land Park, Village Green
(at the corner of Sutterville and Freeport)
 
SponsorWalkerRunner150WalkRunRegButton150GeneralDonation150
 
Step Up Walk Registration Fees
Adults (ages 12 and over)
  • $10 – Early Bird – register by August 31
Children (ages 11 and under)
  • $6 – Early Bird – register by August 31
Step Up 5K Run Registration Fees
Adults (ages 12 and over)
  • $20 – Early Bird – register by August 31
Children (ages 11 and under)
  • $15 – Early Bird – register by August 31
 
This is your big chance to give back! DSIA needs your help raising funds to continue our programs and outreach into 2015 and beyond.
Your participation not only increases awareness and celebrates hope, it also ensures that DSIA will be able to continue to provide support, education, resources, and much-needed (and loved!) events to our community.
“The Step Up walk is a blast! We love coming to hang out with our friends and family, and every year we make new friends. The best part… by raising money to support DSIA, I know we’re supporting the Down syndrome community as a whole.” – A Local Mom
 

Quick Facts
  • Down syndrome is the most commonly occurring genetic condition with an incidence of 1 in 691 births.
  • There are currently over 250,000 individuals living with Down syndrome in the United States.
  • There are approximately 5,000 babies born with Down syndrome each year in the US.
  • Down syndrome is one of the leading clinical causes of cognitive delay in the world
  • Down syndrome is not related to race, nationality, religion or socio-economic status.
  • Individuals with Down syndrome can lead fulfilling lives and be contributing members of society.
CLICK HERE to visit the Step up website.
 
CLICK HERE to download, print and share the Step Up Flyer.
Resources and Support  
 
DSIA New Parent Support
 
Come meet other parents in a safe and comfortable space to discuss all aspects of being a parent to a baby with Down syndrome  - joys and challenges alike! Bring your questions – everything is welcome – or come to listen and share with others. Make friends and develop a support system for the days and years ahead.
 
A DSIA Parent to Parent Mentor will guide each meeting, answer any questions and offer support to new families.
 
This support group is for families who have a prenatal diagnosis of Down syndrome or who have a baby, 0-18 months old with Down syndrome. Please do not bring other children.
 

3rd Thursday of the month
6:30 – 8:30 pm
 
Sacramento County
UC Davis MIND Institute
2825 50th St, Sacramento
 
Yolo County 
American Legion Meeting Room *
523 Bush Street, Woodland
 
Placer County
WarmLine Family Resource Center
6960 Destiny Drive Suite 106, Rocklin
 
*Indicates Spanish speaking DSIA Parent Mentors will be on hand also. 

Grandparents with Grandkids with Down Syndrome (GWGWDS)

 
GWGWDS is an independent group of grandparents with grandchildren with Down syndrome. They are not attached to any organization, agency, or entity. They exist to provide support, information, and education to those who want it. There are no commercial solicitations, no medical advice given, and never any derogatory comments.  They welcome all grandparents worldwide with children with Down syndrome without regard to race, creed, religion, or national origin.
 
CLICK HERE to find them on Facebook. 
Down Syndrome Research and News 
 
Spoken Language Development in Down syndrome

The Laboratory on Language Development in Neurodevelopmental Disorders, MIND Institute, University of California - Davis is  looking for boys and girls, adolescents, and young adults with Down syndrome to participate in a Research Study. 
 
CLICK HERE for more information.  
 
Support Cells in Brain Play an Important Role in DS

Researchers from UC Davis School of Medicine and Shriners Hospitals for Children – Northern California have identified a group of cells in the brain that they say plays an important role in the abnormal neuron development in Down syndrome. After developing a new model for studying the syndrome using patient-derived stem cells, the scientists also found that applying an inexpensive antibiotic to the cells appear to correct many abnormalities in the interaction between the cells and developing neurons.
 
CLICK HERE for more information.
 
Clinical Research Proves: Ds and Autism often Co-exist

Nearly 40 percent of people with Down syndrome also meet the criteria for an autism spectrum disorder, suggests a U.K. study of nearly 500 children, published in Autism Research1. The study found that 38 percent of children with Down syndrome meet a screening test cutoff for either classic autism or another pervasive development disorder on the autism spectrum.

CLICK HERE for more information. 
 
A Baby First!  
 
DSIA is excited to announce it's 3rd book, A Baby First, is here!
 
A Baby First is an original DSIA book featuring local infants and toddlers that shows the beauty of Down syndrome and presents compassionate information written by parents.


CLICK HERE to order your copy now! 

DSIA is extremely grateful to Dr. Lisa Lindsey for all her work on this project. Thank you Lisa! 
 

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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