Down Syndrome Information Alliance
February 2015
FEBRUARY 24th - LAST NIGHT TO PARTICIPATE! 
 
 
Show your support of DSIA and enjoy a yummy night out - every Tuesday in February!
 
March 21 | World Down Syndrome Day
6pm – 8:30pm
Collings West Sacramento Teen |1541 Merkley Avenue, West Sacramento, CA 95691
 
Join DSIA families for a fun night celebrating World Down Syndrome Day!
 
Enjoy Pasta, Salad, Bread and Beverages
 
Fun for the whole family – indoor basketball, foosball, pool table
and Talent Show featuring individuals with Down syndrome.
 
GLUTEN FREE OPTIONS AVAILABLE
 
Ticket Prices:
 
DSIA MEMBERS:
$35 for a family of 5 | $21 for a family of 5 DSIA Members
$10 / adults | $7.50 / adults DSIA Members
$7.50 / children under 12 | $5 / children under 12 DSIA Members
 
 
DSIA is in need of volunteers for this event, if interested, please email Nancy at nancy@downsyndromeinfo.org. 
 
This special night will feature a talent show.... if you are interested in participating, please email Nancy at nancy@downsyndromeinfo.org. 
Saturday, June 20, 2015 | 6pm – 10pm
Sterling Hotel | 300 H Street, Sacramento, CA 95814
 
DSIA Celebrates 10 amazing years of serving Sacramento area individuals with Down syndrome, their families and the professionals who serve them.  The evening will include food, dancing, a silent auction,raffles, a Self-advocate art gallery/auction,  a DSIA book launch and a fantastic guest speaker: Dr. Stephen Nowicki, Developmental Pediatrician at UC Davis MIND Institute and Davis Developmental Pediatrics Group.
 
Our goal is not only to create a fabulous and fun night out to celebrate the DSIA’s 10th anniversary, but also to raise valuable program funds to allow the DSIA to continue to support and empower people with Down syndrome, their families and our entire community!
 
*Dancing *Silent Auction & Raffle *Photo Booth Fun *Appetizers & Desserts *No-Host Bar *Self-Advocate Art Gallery/Auction *DSIA Book Launch
 
$100 | individual
$150 | couple
$21 | DSIA Self Advocate
 
 (limit three tickets per Self-Advocate)
Get your tickets now, space is limited! 
DSIA_Tickets_Button_150
 
 
 
 
Want to donate an item to our silent auction?
CLICK HERE to download the donation letter for this event.
Interested in sponsoring this event?
CLICK HERE to download the sponsorship package.
 
All DSIA active members will be entered into a drawing for 2 Celebration of Hope Tickets or 3 Self Advocate Tickets! Are you a member? 
Follow the membership button to become a member today! 
Drawing will be held  March 21st and announced at the World Down Syndrome Day Celebration!  Must be present to win! 
 
 
 
 
 
Also, anyone who buys a ticket from now until March 21st will be entered into a drawing for family passes to the Sacramento Zoo, Fairytale Town and IMAX Theatre. 
Drawing will be held  March 21st and announced at the World Down Syndrome Day Celebration!  Must be present to win! 
 
 
DSIA Trainings 
 
April 25 |Conservatorship and Special Needs Trust Workshop
3pm-5pm
Sierra 2 Community Center Room 9 | 2791 24th Street, Sacramento, CA 95818
 
What is a conservatorship? A conservatorship is a court proceeding through which a responsible person (called a conservator) is appointed by the court to care for another adult who cannot care for him/herself or his/her finances (called a conservatee).
 
Come get more specific information on conservatorships and special needs trust & bring your questions! There will be plenty of time for Q&A.
 
This training is FREE, but please register online.
 
 
May 30th | Keep Calm and Prepare for your 1st IEP Training
8:30am-12:30pm
Sierra 2 Community Center Room 9 | 2791 24th Street, Sacramento, CA 95818
 
more information to come soon. 
Light snacks and refreshments will be served.
 
This training is FREE, but please register online.
 
Resources and Support  
 
DSIA New Parent Support
 
Come meet other parents in a safe and comfortable space to discuss all aspects of being a parent to a baby with Down syndrome  - joys and challenges alike! Bring your questions
– everything is welcome – or come to listen and share with others. Make friends and develop a support system for the days and years ahead.
 
A DSIA Parent to Parent Mentor will guide each meeting, answer any questions and offer support to new families.
 
This support group is for families who have a prenatal diagnosis of Down syndrome or who have a baby, 0-18 months old with Down syndrome. Please do not bring other children.
 
3rd Thursday of the month
6:30 – 8:30 pm
 
Sacramento County
UC Davis MIND Institute
2825 50th St, Sacramento
 
Yolo County 
American Legion Meeting Room *
523 Bush Street, Woodland
 
Placer County
Starbucks @ Barnes and Nobles | Creekside Town Center
1256 Galleria Boulevard
Roseville, CA 95678
 
*Indicates Spanish speaking DSIA Parent Mentors will be on hand also. 
 

 
Eli's Heart
 
Eli’s Heart is a 501 c3 organization that helps families with travel expenses associated with medical procedures.
 
More information:
 
 
Down Syndrome Research and News 
 
Feds Put New Focus On Down Syndrome
Disability Scoop
As people with Down syndrome live longer than ever before, the National Institutes of Health is looking to reshape its efforts related to the chromosomal disorder. The federal agency is tweaking its Down syndrome research priorities and adding a new focus on life’s later years and associated conditions. Additional areas of emphasis include understanding the progression of Down syndrome, options for treatment and management as well as objectives related to conditions like Alzheimer’s disease, congenital heart disease, hearing and vision problems, gastrointestinal problems, thyroid dysfunction and immune disorders that often co-occur.

NIH Resets Study Plans for Down Syndrome
Education Week
For the first time in seven years, the National Institutes of Health has updated its plan for research on Down syndrome, including an expanded focus on how to improve students' learning and memory and help them participate more in K-12 and higher education. It's a big leap from even a decade ago, and an acknowledgment, say advocates and experts on the syndrome, that research to improve children's medical quality of life is in some places outstripping the pace of innovations to improve their educational trajectory.

NIH Provides Access To De-Identified Data To Help Down Syndrome Research
HealthIT Outcomes
The National Institutes on Health has launched a sub-site of its DS-Connect, creating a web portal for approved professionals allowing them access to de-identified patient data from its Down Syndrome Registry. This information will be used in clinical studies or for recruiting patients to generate new research. The NIH’s effort with Down Syndrome is intended to increase understanding of the disease and how to treat accompanying health problems including the risk of autism, issues with hormones and glands, hearing loss, vision problems, and heart abnormalities, officials said.

UH team works to help patients with DS see better
Pasadena Citizen
New computer-simulated prescribing strategies for glasses may improve the vision of individuals with Down syndrome, thanks to a team of University of Houston College of Optometry (UHCO) researchers who received a $1.67 million grant from the National Eye Institute (NEI).

Research and Markets: DS Pipeline Insights Report 2015
Yahoo Finance
This Down Syndrome-Pipeline Insights report provides comprehensive insights about pipeline drugs across this indication. A key objective of the report is to establish the understanding for all the pipeline drugs that fall under Down Syndrome.
 
In First, Model With Down Syndrome Walks Fashion Week Runway
Among the models strutting the runway at New York Fashion Week will be a woman with Down syndrome.
Education Resources 
 
National Down Syndrome Congress Newsline
January 30, 2015
 
Elementary and Secondary Education Act
Summary 2001-2014
 
Beginning next week, NDSC will be sending out information and action alerts related to the reauthorization of the Elementary and Secondary Education Act (ESEA). In advance of that, they'd like to provide you with some background on the Act, most recently known as No Child Left Behind. For many years, the NDSC has been involved in advocacy efforts to ensure that opportunities for students with disabilities are maximized, and they will continue to do so during this reauthorization period. Please read this summary for helpful information related to ESEA
 

 
 
Lawmakers in Congress are renewing efforts to ensure that the federal government lives up to its promise to fully fund special education. 
 

 
CAC General Meeting
Sacramento City Unified School District (SCUSD) Community Advisory Committee (CAC) for Special Education
 
Tuesday, Feb. 24, 2015
6:30 PM-8:30 PM
Serna Center
5735 47th Avenue
Sacramento, CA
 
Meeting will begin with a discussion on Anti-Bullying with Jessica Wharton, SCUSD Bullying Prevention Specialist.

Childcare is not provided. Agenda will be available 72 hours before the meeting.
 
More information:
 
 

 
 

 
 
 
Self Advocate News & Activities 
 
DSIA World Down Syndrome Day Event | Saturday, March 21
 
Collings West Sacramento Teen | 1541 Merkley Avenue, West Sacramento, CA 95691
 
CLICK HERE for more information. 
 

 
Medi-Cal Managed Care Workshop for Seniors and People with Disabilities in Placer County | 
Thursday, February 26, 2014
 
 
Doors Open: 9:00 a.m.
Workshop: 10:00 a.m. - 11:00 a.m.

Resource Information 
Until: 12:00 p.m.
 
Maidu Community Center
1550 Maidu Drive
(Rooms 1 & 2)
Roseville, CA 95661
 
RSVP REQUIRED
PLEASE RSVP and to request disability accommodation to:
 
Sign language and Spanish interpreters will be at the event. This is a fragrance free event. Please no scented products.
Light refreshments served.
 

 
Access Leisure March Calendar
 
Monday, March 2, Video Pizza, Cost $8.00 6:30-8:45pm
Hart Senior Center, 915 – 27th Street.
We will see the latest release and have some pizza, too. Limited to 70 people.
Course #: 143673
 
Saturday, March 7, Lunch & Cinema – 10:30am – 3:00pm, Regal Natomas Theaters, off Truxel, $8.00
Registration Fee: Must pay $8.00 registration fee in advance. Bring $10.00 for movie and $10 for lunch. (FYI: Suggest $10 in case the movie is 3-D.) Limited to 40 people.
Course #: 143687
 
Monday, March 23, Evening Social: $8.00 6:00-8:30pm,
Hart Senior Center, 915 – 27th Street.
Enjoy an evening with friends over a light dinner, playing table games and other activities.
Course #: 143681
 
Corned Beef & Cabbage Dinner & Dance Sat, March 14, 2015 Hart Senior Center 915-27th Street, 5:30-8:00pm Cost is $16.00.
For everyone who loves Corned Beef and Cabbage, this night is for you. Serving will begin promptly at 5:35 PM. Seating is limited to 100. Catered by Italian Import Co.
Doors Open: 5:15 PM; Dinner: 5:35 PM; Dance: 6:45 PM; Rides to pick up no later than 8:00pm
Course #: 143716
 
CSUS Womens Gymnastics Vs Utah State Sunday, March 15, 2015 1:45pm – 4:15pm, Cost $8.00.
Bring extra money for snacks. Today, the ladies take on the very competitive and awesome Utah ladies. Meet in front of the CSUS Men’s Gym.
Course #: 145023
 
Bok Kai Festival & Parade, Sat, March 21, 9:00am—3:00pm, $35.00
134th Annual Festival held in Marysville honoring Bok Eye, the Chinese God of Controlling Water, pays tribute to the many Chinese Immigrants who worked the gold mines in the 1800s.
Wear comfortable shoes, bring a sack lunch or $8- $12 for food, a lawn chair, light sweater or jacket and extra money for shopping. SEATING is LIMITED. This will be a rain or shine trip, so bring appropriate gear if it looks like rain is possible. Don’t wait to sign up!
Meeting Place: Serna Center, 5735 47th Avenue
Must have 30 to 40 registrants for this program and must register by March 12, 2015
Course #: 143718
 
CLICK HERE for full details and registration.
 

 
Access Leisure Summer Camp
 
Camp Sacramento
June 9-June 12, 2015
(Tuesday-Friday) $450.00
Open to people with intellectual and or
developmental disabilities
**FEES INCLUDE CAMP COSTS, ACTIVITIES, MEALS, TRANSPORTATION, AND STAFFING
On-Line Registration Course # 150681
 
For more information, see application form: (Word) (PDF)

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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