Down Syndrome Information Alliance
March 2015
 
March 21 | World Down Syndrome Day
6pm – 8:30pm
Collings West Sacramento Teen |1541 Merkley Avenue, West Sacramento, CA 95691
 
Join DSIA families for a fun night celebrating World Down Syndrome Day!
 
Enjoy Pasta, Salad, Bread and Beverages
 
Fun for the whole family – indoor basketball, foosball, pool table
and Talent Show featuring individuals with Down syndrome.
 
GLUTEN FREE OPTIONS AVAILABLE
 
Ticket Prices:
 
DSIA MEMBERS:
$35 for a family of 5 | $21 for a family of 5 DSIA Members
$10 / adults | $7.50 / adults DSIA Members
$7.50 / children under 12 | $5 / children under 12 DSIA Members
 
 
DSIA is in need of volunteers for this event, if interested, please email Nancy at nancy@downsyndromeinfo.org. 
 
This special night will feature a talent show.... if you are interested in participating, please email Nancy at nancy@downsyndromeinfo.org. 
Saturday, June 20, 2015 | 6pm – 10pm
Sterling Hotel | 300 H Street, Sacramento, CA 95814
 
DSIA Celebrates 10 amazing years of serving Sacramento area individuals with Down syndrome, their families and the professionals who serve them.  The evening will include food, dancing, a silent auction,raffles, a Self-advocate art gallery/auction,  a DSIA book launch and a fantastic guest speaker: Dr. Stephen Nowicki, Developmental Pediatrician at UC Davis MIND Institute and Davis Developmental Pediatrics Group.
 
Our goal is not only to create a fabulous and fun night out to celebrate the DSIA’s 10th anniversary, but also to raise valuable program funds to allow the DSIA to continue to support and empower people with Down syndrome, their families and our entire community!
 
*Dancing *Silent Auction & Raffle *Photo Booth Fun *Appetizers & Desserts *No-Host Bar *Self-Advocate Art Gallery/Auction *DSIA Book Launch
 
$100 | individual
$150 | couple
$21 | DSIA Self Advocate
 
 (limit three tickets per Self-Advocate)
Get your tickets now, space is limited! 
DSIA_Tickets_Button_150
 
 
 
 
Want to donate an item to our silent auction?
CLICK HERE to download the donation letter for this event.
Interested in sponsoring this event?
CLICK HERE to download the sponsorship package.
 
All DSIA active members will be entered into a drawing for 2 Celebration of Hope Tickets or 3 Self Advocate Tickets! Are you a member? 
Follow the membership button to become a member today! 
Drawing will be held  March 21st and announced at the World Down Syndrome Day Celebration!  Must be present to win! 
 
 
 
 
 
Also, anyone who buys a ticket from now until March 21st will be entered into a drawing for family passes to the Sacramento Zoo, Fairytale Town and IMAX Theatre. 
Drawing will be held  March 21st and announced at the World Down Syndrome Day Celebration!  Must be present to win! 
 
 
DSIA Trainings 
 
April 25 |Conservatorship and Special Needs Trust Workshop
3pm-5pm
Sierra 2 Community Center Room 9 | 2791 24th Street, Sacramento, CA 95818
 
What is a conservatorship? A conservatorship is a court proceeding through which a responsible person (called a conservator) is appointed by the court to care for another adult who cannot care for him/herself or his/her finances (called a conservatee).
 
Come get more specific information on conservatorships and special needs trust & bring your questions! There will be plenty of time for Q&A.
 
This training is FREE, but please register online.
 
 
May 30th | Keep Calm and Prepare for your 1st IEP Training
8:30am-12:30pm
Sierra 2 Community Center Room 9 | 2791 24th Street, Sacramento, CA 95818
 
more information to come soon. 
Light snacks and refreshments will be served.
 
This training is FREE, but please register online.
 
Resources and Support  
 
DSIA New Parent Support
 
Come meet other parents in a safe and comfortable space to discuss all aspects of being a parent to a baby with Down syndrome  - joys and challenges alike! Bring your questions
– everything is welcome – or come to listen and share with others. Make friends and develop a support system for the days and years ahead.
 
A DSIA Parent to Parent Mentor will guide each meeting, answer any questions and offer support to new families.
 
This support group is for families who have a prenatal diagnosis of Down syndrome or who have a baby, 0-18 months old with Down syndrome. Please do not bring other children.
 
3rd Thursday of the month
6:30 – 8:30 pm
 
Sacramento County
UC Davis MIND Institute
2825 50th St, Sacramento
 
Yolo County 
American Legion Meeting Room *
523 Bush Street, Woodland
 
Placer County
Starbucks @ Barnes and Nobles | Creekside Town Center
1256 Galleria Boulevard
Roseville, CA 95678
 
*Indicates Spanish speaking DSIA Parent Mentors will be on hand also. 
Self Advocate News & Activities 
 
DSIA World Down Syndrome Day Event | Saturday, March 21
 
Collings West Sacramento Teen | 1541 Merkley Avenue, West Sacramento, CA 95691
 
CLICK HERE for more information. 
 

 
Access Leisure Summer Camp
 
Camp Sacramento
June 9-June 12, 2015
(Tuesday-Friday) $450.00
Open to people with intellectual and or
developmental disabilities
**FEES INCLUDE CAMP COSTS, ACTIVITIES, MEALS, TRANSPORTATION, AND STAFFING
On-Line Registration Course # 150681
 
For more information, see application form: (Word) (PDF)
 

 
A Home of my Own: Support for Living Independently
 
Tuesday, March 17th, the Center for Excellence in Developmental Disabilities and the Think Transition workgroup are hosting the A Home of my Own: Support for Living Independently workshop at the UC Davis MIND Institute from 6-8 pm.
 
CLICK HERE to view the flyer.
 
The workshop is free, but you must register at ddcenter@ucdmc.ucdavis.edu to attend. For more information contact Diane Larzelere at 916-703-0268.
 

 
Access Leisure - April Calendar
 
Monday, April 13, Video Pizza, Cost $8.00 6:30-8:45pm
Senior Center, 915 – 27th Street. We will see the latest release and have some pizza, too. Limited to 70 people.
Course #: 143674
 
Saturday, April 18, Lunch & Cinema – 10:30am – 3:00pm
Registration Fee of $8.00 (must be paid in advance) Location of the theater: Regal Natomas Theater, 3561 Truxel Road. Bring $10.00 for movie and $10 for lunch. (FYI: Regular movies cost $8.50. 3-D movies cost $12.50.) Limited to 40 people.
Course #: 143688
 
Monday, April 20, Evening Social: Cost $8.00 6:00-8:30pm, Senior Center
915 – 27th Street, Enjoy an evening of food and friends.
Course #: 143682
 
Pasta Dinner and Bingo Night, Saturday, April 11, 2015, 6:30-8:30pm, Cost: $16.00
Hart Senior Center, 915-27th St. For everyone who loves pasta (Penne pasta & Meat, French Bread, Salad and a Dessert) this night is for you. After dinner, we will all play Bingo!!! Everyone will have a chance to win a great prize!!! Doors open at 6:15 and serving will begin promptly at 6:40pm. Seating is limited to 75. Don’t be late.
Course #: 143706
 
Hornets Men’s Baseball Vs Seattle, Sunday, April 19, 2015, 11:45am – 2:00pm
Cost $8.00
Bring extra money for snacks. The Hornets take on the very competitive and awesome Seattle Team. Meet at the baseball field next to the parking structure.
Course #: 145024
 
CLICK HERE for more information and registration for the above events.
 
Presented by City of Sacramento Access Leisure in partnership with V.I.P. Program
Sacramento Open Track and Field, Sunday, April 26, 2015, 8:00am-3:30pm.
Luther Burbank High School Football Stadium,
3500 Florin Road, Sacramento, CA 95823
There is no cost for this event. Must pre register
CLICK HERE for registration form.
 
Down Syndrome Research and News 
 
Feds Put New Focus On Down Syndrome
Disability Scoop
As people with Down syndrome live longer than ever before, the National Institutes of Health is looking to reshape its efforts related to the chromosomal disorder. The federal agency is tweaking its Down syndrome research priorities and adding a new focus on life’s later years and associated conditions. Additional areas of emphasis include understanding the progression of Down syndrome, options for treatment and management as well as objectives related to conditions like Alzheimer’s disease, congenital heart disease, hearing and vision problems, gastrointestinal problems, thyroid dysfunction and immune disorders that often co-occur.

NIH Resets Study Plans for Down Syndrome
For the first time in seven years, the National Institutes of Health has updated its plan for research on Down syndrome, including an expanded focus on how to improve students' learning and memory and help them participate more in K-12 and higher education. It's a big leap from even a decade ago, and an acknowledgment, say advocates and experts on the syndrome, that research to improve children's medical quality of life is in some places outstripping the pace of innovations to improve their educational trajectory.

NIH Provides Access To De-Identified Data To Help Down Syndrome Research
HealthIT Outcomes

UH team works to help patients with DS see better
Pasadena Citizen
New computer-simulated prescribing strategies for glasses may improve the vision of individuals with Down syndrome, thanks to a team of University of Houston College of Optometry (UHCO) researchers who received a $1.67 million grant from the National Eye Institute (NEI).

Research and Markets: DS Pipeline Insights Report 2015
Yahoo Finance
This Down Syndrome-Pipeline Insights report provides comprehensive insights about pipeline drugs across this indication. A key objective of the report is to establish the understanding for all the pipeline drugs that fall under Down Syndrome.
 
Malanoski has Down syndrome, but until a few years ago, he ate without prompting, dressed himself and was relatively easy for the Longs to care for in their Elk Grove Village, Ill. home, as they have for 26 years. For 20 years, he worked as a bagger at Jewel, a supermarket. Now, however, his sweet smile is topped by short gray hair.
He can’t eat or dress by himself. He no longer works; he was forgetting how to bag groceries. He no longer knows how to tie his shoes. Malanoski, 57, lives with a neurological double-whammy: In addition to Down syndrome, he has Alzheimer’s disease
 
Disability Scoop
The inner workings of people with Down syndrome age much faster than typically-developing individuals, a new study suggests.
 
Now that their life expectancy has been stretched into the 50s and 60s, individuals with Down syndrome represents the single largest group with a genetic predisposition for Alzheimer’s disease. As such, they have become the primary study group for new Alzheimer’s tests, preventive treatments and potential cures.
 
CDA Cares Dental Clinic for Californians in Need 
CDA Cares Dental Clinic for Californians in Need

Sponsored by the California Dental Association Foundation (CDAF) and CDA
 
When:   Friday, March 27, and Saturday, March 28, 2015

Where:  Cal Expo, Buildings C & D
1600 Exposition Blvd.  Sacramento, CA 95815
Visit:  http://www.cdafoundation.org/cda-cares/sacramento for more information (see the patient FAQ document)
 
Free Parking
 
Time:  Doors open at 5:30 a.m. Patients are seen on a first-come, first-served basis with a goal of providing care to more than 2,000 people during the two­ day clinic.
 
Who:   Californians  having difficulty accessing dental care, including  uninsured, under-insured, unemployed, adults and children, and others who are in need of oral health care.

Children under 18 must be accompanied by a parent or guardian.

Care:   The services offered are limited to cleanings, fillings, and extractions, some partials to replace front teeth, some root canals, some dentures, oral health education and assistance in identifying a source of dental care. People with uncontrolled blood pressure or diabetes may prevent you from receiving dental care at the event. Be sure take prescribed medications as directed.
 
Care is provided at no cost by dental professionals donating their time and skills.

Note:   Identification is NOT required.  Interpreters are available to assist people who do not speak English.

Please do NOT wait for CDA Cares to seek care for dental pain as this could be a sign of a serious condition. Visit cda.org/clinics for a list of low-cost dental clinics and other information.

If dental pain is severe and accompanied by a fever or swelling, call a dentist immediately or go to a hospital emergency room.
 
National Down Syndrome Adoption Network 
All children benefit from the opportunity to grow up in a loving family, but not all birth families feel they are able to meet the needs of a child born with Down syndrome.
 
The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families.
 
The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome.
 
There are no fees for any of the services provided by the National Down Syndrome Adoption Network.
 
NDSAN's mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.
 
To learn more about the NDSAN, visit www.ndsan.org.
 

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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