February 2013
DSIA  February Events  
 
Dental Presentation 
 
Thursday, February 28 | 6:30-8pm
 
Through a fun and interactive presentation you will have better understanding of the importance of oral health.

CLICK HERE to learn more

Sierra 2 Center, Room 11 | 2791 24th Street, Sacramento, California 95818

CLICK HERE to RSVP
DSIA March Events 

IEP Training with WarmLine Family Resource Center

Saturday, March 9 | 9-noon

Special Education (IEP) Training for Parents - YOU are your child’s best advocate!
In this FREE training, you’ll learn about:
  • The IEP binder which we will provide
  • A brief summary of Special Education Law (IDEA)
  • Parent’s rights and responsibilities
  • Assessment and evaluation
  • How to prepare for the IEP meeting
  • Due process and procedural safeguards
We can answer your questions about the special education process and help you prepare for your child’s IEP in a positive, proactive way.

A light meal will be served.

This training is only for families whose children who are turning 3 and graduating from Early Intervention services

Sierra 2 Center, Room 10 | 2791 24th Street, Sacramento, California 95818

CLICK HERE to Register for this Event. 
This is an adult only presentation and Pre-Registration is required.



Transition to Adult Services for Youth with Disabilities

Thursday, March 14
4:00-7:00 pm—Resource Fair
5:00-8:30 pm—Program

As your child moves  into the world  of adult services, you and he/she  will have many  choices regarding  services  - learn more  about the options that are available.
Resource Faire & Presentations on:
  • Supporting Self-Determination/Self-Advocacy
  • Living Options
  • Day Programs,  Employment & College
  •  Finding Adult Medical Providers
  •  Meet & Talk with Drs. Michael Chez, Shawn Kile, Dennis Hart
Play care is available for siblings 2-10 years old with a reservation. Space is limited to 2 siblings per family.

Light refreshments will be served.

Sutter Medical Plaza, 1625 Stockton Blvd., Sacramento

This event  is free, but pre-registration is required. Please register online  (or go to  www.warmlinefrc.org), emailCid@warmlinefrc.org or call 916-922-9276 for more  information.
Down Syndrome Conference Scholarship 

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Each year thousands of people from across the globe attend the National Down syndrome Convention. For most it is to hear the latest information from world-renowned experts. For others, it’s a great vacation. But, for nearly all, there is the one-of-a-kind family feeling family reunion feeling that permeates the whole convention weekend.

The DSIA has received generous grant funding from Sam’s Club which will allow us to provide scholarships for Self-Advocates (individuals with Down syndrome ages 15 and older) wishing to attend the National Down Syndrome Congress Convention in Denver, Colorado July 19-21, 2013.
 
 
CLICK HERE for more information about the DSIA scholarship and application

CLICK HERE for more NDSC Convention information
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Celebration of Hope 

Saturday, April 13, 2013 | 7:00 pm – 10:00 pm

Sierra 2 Community Center, Curtis Hall and Courtyard
2791 24th Street • Sacramento, CA 95818

Please join us for a very special evening of dancing, food and fun as we celebrate the hope that is inside us all.

This is an adult only event (ages 21 and over) and includes music, light appetizers and desserts, a silent auction and a very special book launch from DSIA. And, so you can capture all the great memories and take them home with you – we will have a photo booth!

Support programs to empower individuals with Down syndrome, their families and our community.

Tickets Must Be Purchased by April 7th:
$35/individual | $25 DSIA Members
$60/couple | $45 DSIA Members

(Tickets include one drink ticket per person)

 CLICK HERE to purchase tickets



Want to know how to get involved?

Email heather@downsyndromeinfo.org to join the planning committee.

Help solicit donation items for our silent auction. Email 
heather@downsyndromeinfo.org for more information.

CLICK HERE to learn how to sponsor this special night!
Alice's Adventures in Wonderland

DSIA families are invited as Stages' guests (complimentary tickets) to attend this year's Ballet Folsom's production of Alice's Adventures in Wonderland.  Saturday March 16.  730p at the Jill Solberg Performing Arts Theater at Folsom High School

If you would like to attend please RSVP, by 2/27, to Kris at krisbyrne@sbcglobal.net.
 
Sound Out is part of Stages - Folsom Dance Arts, along with it's sister companies Ballet Folsom and iMPACT Contemporary Dance.  Each company has one annual production, full blown with costumes, backdrops, props, music and always great choreography and dancing.  
 
To learn more about Stages-Folsom Dance Arts visit http://www.stages-performingarts.org/.  Stages company members train at the Hawkins School of Performing Arts.
 
 
 
 
 
 
  
FEBRUARY 2013 
Greetings!      

We are pleased to invite you to participate in the pilot of our online version of The Learning Program™.  The Learning Program utilizes current research on best practices and effective teaching strategies to improve educational outcomes for children with Down syndrome.  For more information, visit www.dsfoc.org or clickhere.   
 
The LP Online Pilot will consist of four sessions from our Level 1 class offered through Webex in live or recorded formats.  Level 1 is for parents of children wtih Down syndrome between 3 and 6 years who are interested in support with vocabulary expansion, sight word acquisition, sentence building, personalizedmaterials, and early math.   
 
Note: These sessions are offered throughout the nation through our Learning Program Partners.  If you are already participating in a Learning Program group, these presentations may not provide you with new or different information.  Similarly, the presentations have been offered at the NDSC Conference and other conferences nationwide.

Please contact us at info@dsfoc.org if you have questions.
 
Online Registration Through Eventbrite
   

Register Now 
 REGISTER NOW
   
Additional Information and Forms 
Here is additional information for your consideration: 
  • Enrollment in the program is limited and spaces will be filled on a first-come, first-served basis. 
  • Registration and payment must be received by February 26, 2013 for a guaranteed spot. 
  • Classes will meet online for approximately 1.5 hours.
  • Tuition includes online instruction and access to recorded instruction, instructional handouts and online monthly personalized support.  Reading and math materials can be ordered from the DSF online store or downloaded for free from our website.  
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THE JOHN MERCK FUND ANNOUNCES INITIAL GRANTS IN 
MULTI-YEAR PROGRAM TO SUPPORT TRANSLATIONAL RESEARCH INTO 
DEVELOPMENTAL DISABILITIES
 
The Research Program Will Focus on Down Syndrome and Fragile X Syndrome,
With Three Initial Million-Dollar Grants Awarded

 
The John Merck Fund announced today the first three grants – of $1 million each – through its new 
multi-year research program to support translational research into developmental disabilities. 
The Translational Research Program supports scientists in developing 
treatments and improving outcomes for individuals with developmental disabilities, particularly 
Down syndrome and Fragile X syndrome (and FX-associated disorders). 
 
“Through this Program, the Fund is expanding its longstanding commitment to improving the lives of 
people with developmental disabilities and their families,” said Olivia Farr, Chair of The John Merck 
Fund. “The Program will make approximately 10 grant awards of $1 million each.”
 
“What’s especially exciting about this Program,” said Marsha Mailick, PhD, Chair of the Fund’s 
Scientific Advisory Board, “is that it supports research with potential game-changing impact that is 
within the realm of probability – not just possibility – and could be achieved within 10 years.”
 
  • Jeanne B. Lawrence, PhD – Interim Chair and Professor of Cell and Developmental Biology & Pediatrics, University of Massachusetts Medical School (Worcester, MA)
 
Project Title: Accelerating Down Syndrome Progress by Translating Dosage Compensation to Trisomy
 
Project Summary: Where most people have two copies of Chromosome 21, those with Down syndrome (also known as trisomy 21) have all or part of a third copy of this chromosome. This project will pursue a unique approach to Down syndrome translational research based on the concept of functionally correcting the over-representation of Chromosome 21 genes, by de-activating one of the three copies of Chromosome 21. The Lawrence lab has long worked on uncovering basic mechanisms whereby the expression of normal genes is controlled during development, through a process termed epigenetics (changes to how DNA is packaged). The overall goal in this project is to translate recent developments in understanding these basic epigenetic mechanisms to a new research frontier in chromosome pathology that accelerates clinical translational progress in Down syndrome.
 
 
Summer Camp FUN! 


Summer Camp - Access Leisure Camps
June 12-15, 2012, #108674 (Course Number)
 
 
Come join us at this 4 day/3 night residential camp being held at Camp Sacramento located in the beautiful Sierra Mountains near Lake Tahoe. This camp is geared for teens and adults who have intellectual and or developmental disabilities, educational hikes and many day and evening activities
 
 
*Please fill out and return the application form for review by Program Coordinator. Application does not guarantee acceptance to camp. All accepted applicants will be notified  


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Dedicated Newsletter | February 13, 2013

Camp Krem for Developmentally Disabled
Summer Camps Begin June 9
 
   
Camp Krem, located in the beautiful Santa Cruz Mountains, provides summer camp opportunities for children and adults with disabilities. 
(Autism, Down Syndrome, Cerebral Palsy, and other challenges)
  • 10 cabins 
  • Large, multi-activity center and dining hall
  • arts/crafts center
  • playground
  • campfire arena
  • outdoor camp areas
  • huge, specially designed swimming pool
  • Choose Traditional or Main Camp program, Outdoor Adventure Camp, or six unique Travel Camps   
Camp Krem programs help campers develop independence and self-esteem while experiencing fun, creative, and challenging activities.  
 
102 Brook Lane, Boulder Creek, Santa Cruz Mountains, Ca
(60 miles South of San Francisco) near Santa Cruz
 
Transportation Optional from 
Sacramento, Emeryville, San Jose/Campbell 
 
 
 
 
Session Fees
 
5-day, $700 | 7-day, $980 | 10-day, $1400  |12-day, $1680
 
 
 
 
 
 
For more info:  
 
 
 
 
510-222-6662
 
Like us on Facebook   
 
 
 
Activities
 
  • Daily swimming
  • arts and crafts
  • performing arts
  • dance
  • cheerleading
  • cooking
  • sports.games
  • drama/skits
  • music, rhythm band
  • campfires
  • hiking
  • nature programs 
 
 
 
  

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