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Going Forward: DMRF Canada February 2019 E-Newsletter
Table of Contents
Mental Health Resources
´╗┐Mental health plays a direct role in our behavior; the way we think, feel and/or act. If you know someone who may be experiencing any of the following symptoms, you can direct them HERE to find help near them.
 
#Dystonia Support
Webinar for Parents of Children with Dystonia.
If you didn’t get a chance to see it, click here.
 
Sign Up Today: Global Dystonia Registry 
 
The DMRF Canada is a proud partner of the Global Dystonia Registry. The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia. 
 
Although the focal dystonias have many different manifestations, most experts believe they share a common pathogenesis or mechanism that causes the disorder. Collecting information from different patient populations may help us identify the common features that they may share.
 
Register today - and help to guide future dystonia research! 
 
 
 
 
 
 
Rare Disease Day
February 28th is - Rare Disease Day! 
 
Article ImageYou can give a gift to support the dystonia community – click the image to follow the link and see your options to donate. All proceeds will support dystonia
research and support programs. 
 
DMRF Canada Survey 2019 -
Botulinum Neurotoxin Therapy
  
DMRF Canada is dedicated to supporting the 50,000 patients in Canada that suffer from dystonia, a neurological movement disorder.
If you are a person living with dystonia, you are not alone. We want to hear from you. Please take 10 minutes to complete this survey about your satisfaction with botulinum neurotoxin therapy. At the end of the survey, you will have a chance to enter a prize draw for one of five gift cards from Amazon.ca, valued at $100 each. Click here for contest terms and conditions.

Please respond by Friday, March 22, 2019.
 
ANNOUNCING: The Jackson Mooney Dystonia Patient Grant 
a Dystonia Patient Education Grant Valued at $5,000
Letter of Intent Deadline: March 15, 2019
 
If you are interested in applying for the 2019 Jackson Mooney Patient Grant, please submit a letter of interest to DMRF Canada by March 15, 2019, explaining your personal situation and detailing how you would plan to use the grant funds.
To find out about eligibility criteria and for details on how to apply please click here.
 
Volunteers Needed for Calgary Casino 
We are looking for casino volunteers to help staff the DMRF Calgary Casino at
on August 11 and 12, 2019! 
The night shift is the most challenge to recruit for, so if any of you have friends or relatives that want to volunteer for a good cause, we'd be delighted to have them. Remember: Each volunteer contributes the equivalent of $2,000.00 for dystonia research and support programs.
Click here for more information and please contact DMRF Canada at info@dystoniacanada.org if you are interested in volunteering. Thank you for your support!
 
 
Your Chance to Give a Meaningful Gift
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February is a month to show people you care. If you love someone with dystonia our Dystonia Alert Bracelet would be a great choice. Click the image for details and order today!
 
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Attention Researches - Deadline is Approaching: 
Mach 15, 2019

Its back and we are looking for applicants. The Banting Research Foundation Discovery Award, supported by DMRF Canada is a one-year grant of up to $25,000 that will support research related to the causes, mechanisms, prevention, and treatments which could potentially enable medical breakthroughs and trans formative healthcare advances to find a cure for dystonia.For more information click here. 
 
Upcoming Support Group Meetings
 
DMRF Canada is proud to connect patients with support groups around the country. Click here to find a group near you.
 
 
 
 
 
 
Upcoming Events
 

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