´╗┐NSUN weekly bulletin
Monday 18th November 2019
Dear Shaping Our Lives
Welcome to the Monday 18th November 2019 edition of our weekly ebulletin - full of news, views, events, jobs and involvement opportunities.
we're sharing lots of manifesto, election and voting information form the voluntary sector.
Bulletin items 
If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at
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Please note: Sharing is not endorsing
Sometimes, we may feature items that you (and we) may not necessarily agree with but we feel it's important to make our members aware of what is happening out there.
Our work 
As well as browsing the news from the wider membership you can also find out more about some of our work:
NSUN News 
Update about the Mental Health Act Review and support URGENTLY wanted
Over the last few months, NSUN has continued campaigning with other user-led groups for major changes in the Mental Health Act Review recommendations, to bring them in line with full human rights under the United Nations Convention on the Rights of Persons with Disabilities. 
We now have a one-page campaign sheet which can be used to encourage still more individuals and organisations to sign up to our campaign. We have also produced a model letter to send to local MP candidates during the general election period. This is a crucial time, both because of the general election and because we have confirmation that, despite everything which has been going on politically, a Green/White Paper based on the Review recommendations is still expected in January, or otherwise in the early New Year.
We would very much welcome your support in two important ways:
  1. Using our one-page campaign sheet, available here, to obtain more signatures for our campaign from both individuals and organisations
  2. Using our model letter for MP candidates to call on them to support our campaign. You can find a copy with hyperlinks here and one with full web links here. For guidance about how to contact MP candidates, see here.
For more information, or if you have questions, please email Dorothy Gould.
NSUN AGM and Members' Event 2019 - York
Read our short summary of the NSUN AGM and Members' event in York on 24th October hereYou can read the twitter feed on #nsunagm19 and here.
The theme this year was the 'value of user-led groups'
NSUN Members' Manifesto 2019
Our Members' Manifesto 2019 was launched at the NSUN AGM & Members' event 24 October 2019It draws on feedback from our AGM & Members' event 2018, the 2018 survey about the manifesto and a wide range of project and influencing work.
SRN is on Twitter!
Mental health knowledge built by service users and survivors. The Survivor Researcher Network (SRN) has a new Twitter account. You can find us at @SurvivorResNetFind out more about SRN and how to join here.
Featured blogs and articles 
NSUN Trustee Emily Reynolds 'How austerity targeted our mental health...and why "we're finding it hard to support one another"
On co-production Ally Writes  'It is NOT a synonym for public engagement, service user involvement or consultation. It is NOT just allowing people a say in decisions about themselves individually or collectively, and above all it is not something which retains power in the hands of professionals with the patient or service user brought in at a later stage.'
Manifestos from the voluntary sector 
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Disabled People's Manifesto 2019
Inclusion London is a member of Reclaiming Our Futures Alliance, which has just released its Disabled People’s Manifesto, and demands for the first 100 days of the new government!

This manifesto has been written in consultation with Disabled People’s Organisations and Disabled people across the UK, and is based on the social model of disability and the cultural model of deafness. Now we need your help to campaign on it!
Disabled People's Manifesto 2019:
Our asks for the new government:
Liberty Manifesto for Human Rights
'I believe in a better society' is a manifesto challenging the candidates and canvassers on some of the biggest and most crucial human rights issues of our time.
A Just Fair Manifesto for Social Rights
It includes eight policies that would make a real difference for social rights in the UK:
  1. Bring the socio-economic duty to life
  2. End the No Recourse to Public Funds
  3. Give people seeking asylum the right to work after they have waited six months for a decision on their initial asylum claim
  4. Recognise the right to food
  5. Reverse the two-child limit on social security entitlements
  6. Ensure there is a watertight division between migration control and access to healthcare
  7. End no-fault evictions under Section 21 of the Housing Act 1988
  8. Restore the link between social security entitlements and the cost of living
Child Poverty Action Group Manifesto
A manifesto for ending child poverty calling on the next government to:
  • Invest in children's benefits
  • Bring in a child poverty strategy
  • Build a more effective social security system for all
Election and voting information 
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Shaping Our Lives - An Accessible Election
The latest bulletin from Shaping Our Lives provides an overview of resources to help make the election and voting process more accessible. It brings together information and videoa from a range of sources. Access the bulletin here.
Your rights, registration, support
A group of London-based activists are trying to ensure all survivors/service users are able to vote.
They want to make sure that everybody knows their rights, is registered to vote, knows exactly how they can vote, are given adequate support at polling stations and are able to get to the polling station on election day. They are particularly interested in helping those who are entitled to vote but in hospital and unsure how they can cast their vote. They will also be crowdfunding for transportation and offering escorts to help people get to the polling station.
For more information contact Emily Reynolds on
As the country heads towards a general election, The King's Fund will be presenting expert analysis on all the issues and what they mean for health and care. Visit the essential round-up page.
Stonewall's guide om registering to vote
The deadline for registering to vote is 11:59pm on Tuesday 26 November. Read and share guidance on how to register to vote.
Are you currently tapering off medication? 
BBC documentary wants your involvement ASAP
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The BBC is producing a documentary about the long-term side effects and withdrawal effects of antidepressant medication.
They are looking to speak to individuals aged 18-35 in three capacities:
1) Coming off antidepressants
Looking for individuals who have decided to come off their medication and would be open to allowing us to follow their journey throughout this process, alongside the reporter of the film who will be doing the same. By following a number of people on this journey, the film will illustrate the diversity of peoples' experiences in coming off medication and the advice they are given on how to safely do so. Filming will mainly involve video blogs.
2) Dating on antidepressants
We would like to set up some filming with a group of young people who are taking antidepressants, to talk about the difficulties of dating on this medication. This would reference the side effects some people experience, namely sexual dysfunction and feeling emotionally 'numb.'
 3) Positive experiences of antidepressants
Looking to speak to individuals aged 18-35 who feel they have had a positive experience with this medication and found it has significantly benefitted them, whether that be one specific type of medication or a number of them over a period of time.
The BBC appreciates the very sensitive nature of this subject and will ensure you are supported throughout. If you would like to share your experience and are open to finding out more about the programme, please contact: or
Deadline: ASAP preferably by Monday 25th November
Self Care Week: 18-24 November
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Join the Self Care twitter chat today at noon on #SCWchat
View the Self Care Forum Newsletter for more information,
Self Care Week Resources: 
A wide range of resources from the Self Care Forum and from external partners are available to help you promote Self Care Week and throughout the year.  Here are two newsletters with helpful resources: 
Put PIP and WCA Assessments On The Record, A Call To Action 
Recovery in the Bin
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'Recovery In The Bin are joining forces with Disabled People Against Cuts (shoutout to Manchester DPAC, Sheffield DPAC, and GM Coalition of Disabled People) to offer assessment compliant recording kits for people to borrow to record their PIP assessments. We are doing this because there is overwhelming evidence that when assessments are not recorded and there are no witnesses, the assessment reports are persistently and fraudulently inaccurate, and are then used to deny people the support they need.'
Find out more here.
Appeal to save Self Injury Support 
Can you help?
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Self injury Support, formerly Bristol Crisis Service for Women, has been offering direct peer-led support to women who self-harm for over 30 years.

Now we need your help to save our services and carry on giving lifesaving help to women and girls who use self-harm, because without your support the only free, UK-wide self harm support service will close in early 2020.

Despite our best efforts, we are struggling to secure funding to carry on running our services after the end of January 2020.
In the current climate, there is less and less funding available for small organisations like ours which do unique and vital work, but don’t have the capacity to fundraise full-time.

Please click here to view the appeal on the SISH website here.

If you feel able to offer your support and/or to circulate this appeal it would be hugely appreciated. If everyone connected with the organisation was able to give us £5 a month then we would never need to apply for funding again.
Peerfest 19 - Register now! 
National celebration of peer support
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Come and experience a showcase of diverse groups from around England and Wales that all champion mental health peer support in their own unique ways. If making peer support special to your own community, culture, faith, customs and beliefs is something you’re passionate about – join Peerfest19  in the Midlands this year.
When: Tuesday 3 December 2019
Time: 11:00 - 19:00
Where: West Bromwich Albion Football Club, 9 Birmingham Road, West Bromwich
B71 4LF

A limited number of bursaries are available to help with travel and expenses. For more information, call 07500 778321 or email
Book: Windrush (1948) and Rivers of Blood (1968) 
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This volume looks at Britain since 1948 – the year when the Empire Windrush brought a group of 492 hopeful Caribbean immigrants to the United Kingdom. “Post-war Britain” may still be the most common label attached to studies in contemporary British history, but the contributors to this book believe that “post-Windrush Britain” has an explanatory power which is equally useful. The objective is to study the Windrush generation and Enoch Powell’s now infamous speech not only in their original historical context but also as a key element in the political, social and cultural make-up of today’s Britain.
Contributions to the book use a diversity of approaches: from the lucid, forward-looking assessment by Trevor Phillips, which opens the volume; through Patrick Vernon’s account of the legacy of Powell’s speech in Birmingham and how it inspired him to launch a national campaign for Windrush Day; to the plea from novelist and playwright Chris Hannan for a fully inclusive, national conversation to help overturn deeply ingrained prejudice in all parts of our society.
The book can be purchased here.
A 21st Century approach to the Gut and Brain Connection 
Chy-Sawel Conference 2020
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The Chy-Sawel Project is a charity dedicated to championing a 21st century approach to mental health treatment and the establishment of a holistic treatment centre, where a nutritious diet, practical exercise, talking and activity therapies, will provide a solid foundation for treatment of mental health conditions.
Part of Chy-Sawel's remit is to gather evidence based research on the connections between gut and brain health, then disseminate it to health professionals, education authorities, complementary therapists, carers, service users and the wider public, on our website and by holding conferences.

2020 conference details:
When: Saturday, March 21st. 09:00 – 17.00
Where: | DoubleTree by Hilton, Redcliffe Way, Bristol. BS1 6NJ
Health and Wellbeing Alliance news 
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Call for evidence: Weight Management for People with Severe Mental Illness
The Mental Health Consortium (Association of Mental Health Providers, Centre for Mental Health, and Rethink Mental Illness) with Health and Wellbeing Alliance partners Men’s Health Forum, the National LGB&T Partnership and Race Equality Foundation, have been commissioned to investigate weight management for people severely affected by mental illness.
The project, which is funded by the VCSE Health and Wellbeing Alliance, will report on current and emerging positive practice, and it will make recommendations about interventions and ways of working that show promise in reducing the physical health inequalities faced by people with severe mental illness, such as preventable conditions like cardiovascular, respiratory and some cancer by way of example. 
We are now seeking evidence from people and organisations who are willing to share their knowledge, experience and understanding. We are interested in all kinds of work in this area, especially:
  1. first person accounts about weight management from people with experience of living and working with this issue; and first person account from people with severe mental illness on their weight management
  2. strategies and interventions that have been put into practice, with or without success.
All submissions will be gratefully received and will help to inform this project’s recommendations.
Key areas of interest
  • What strategies and interventions have been tried already?
We would like to hear about any weight management schemes that have been developed for people with severe mental illness, especially those that have been put into practice. What was the thinking behind them? What difficulties did they run into, if any? What were the outcomes? To what extent did the perspective of people with lived experience influence this scheme?
  • What experiences have people with severe and enduring mental illness had with weight management interventions?
We would like to hear about what people with severe mental illness want from weight management schemes. Have they experienced any particularly good or bad interventions? Do they have additional needs that aren’t being met by mainstream services? What have they, or would they, find most helpful?
  • What additional barriers do people with severe and enduring mental illness encounter with managing their weight?
We would like to hear about challenges faced by people on account of their mental health when it comes to weight management. How do severe and enduring mental illnesses affect someone’s ability to manage their weight? Do people with severe and enduring mental illness experience additional problems accessing and adhering to the services?
How to send evidence
We welcome evidence in a range of formats. Written submissions should be no more than 3,000 words in total and can be accompanied by supporting documents, web links or videos.
The deadline for submission is 16 December 2019
Please ensure you give us your name, organisation (if relevant) and contact details, indicating if you would like us to treat your evidence anonymously.
Any questions?
If you would like to know more about this project, please get in touch with Emma Bailey at and/or Dania Hanif at
State of Care conference: Ethical care: A bold reform agenda for adult social care 
IPPR report launched
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NSUN attended the State of Care conference 12 November. This marked the launch of the Ethical care: A bold reform agenda for adult social care report.
The event provided the opportunity to consider the following questions:
  • How we create a thriving social care system that works for people’s needs?
  • What long-term and sustainable answers are for the health workforce?
  • How we can seize upon innovation to create a genuinely 21st century NHS?
  • What the next ten years holds for public health and prevention?
Keynote speaker Lord Darzi acknowledged the 'innovative outputs' of Long-Term Plan and ambition to take down bounbdaries between secondary and primary care. He also spoke about the importance of quality being driven by incentives and not over-regulation.
The conference highlighted the contradiction of an improvement in an overall  the 'health of the nation' and increased health inequaities.
Download the full report here.
FREE online 7-Week Boot Camp on Engaging Citizens in Policymaking 
Article ImageFree Online Boot Camp | Exclusive for Public Servants & Policymakers | Registration extended to 29 November
In this 7-Week Boot Camp on Engaging Citizens in Policymaking you’ll learn some of the best techniques and tools to help government interact with the public, as well as case studies on the most innovative new approaches from around the world.
Find out more here.
Article ImageEvents reminder
Peerfest 2019
When: Tuesday 3 December 2019
Time: 11:00 - 19:00
Where: West Bromwich Albion Football Club, 9 Birmingham Road, West Bromwich
B71 4LF
Understanding Dissociation & Trauma  
When: Tuesday 03 December 2019
Time: 10:00 - 16:00
Where: YHA York, Water End, Clifton, York, YO30 6LP
Cost: £42 (includes refreshments & materials - no lunch)
OR £52 (includes refreshments, materials and lunch)
You can find out more and book here.
Conference: Austism in the Therapeutic Space 
When: Thursday 5th December 2019
Time: 09:30 - 14:30
Where: The Blythswood Hotel, 11 Blytheswood Square, Glasgow, Scotland G2 4AD
Email to book a place.
Happy Heads Winter Warmer - Mental Health Event
When: Saturday, 18 January 2020
Time: 13:00 - 17:00
Where: New Life Croydon, 5 Cairo New Road, Croydon, CR0 1XP
Politics of Participation in Mental Health
When: Wednesday 22 January 2020
Time: 11:00 - 16:00 
Where: University of Essex Colchester Campus, Wivenhoe Park. Colchester , CO4 3SQ
Find out more here.
Evolving research through lived experience
CRASSH, University of Cambridge
Conference dates: Wednesday 25 & Thursday 26 March 2020
Further information is available on the CRASSH website.
HCUK Conferences  
Healthcare (HCUK) Mental Health events
For all the latest upcoming healthcare conferences, please click this link:
For a 20% discount quote ref: HCUK20NSUN when booking.
For news and event updates follow on Twitter:
@HCUK_Clare for healthcare @SCUK_Kerry for social care
GOV.UK News 
Stepping Forward to 2020/21: The mental health workforce plan for England
This plan (launched in July 2019) sets out measures to expand the mental health workforce in England and fulfil ambitions to improve mental health services. By 2020 to 2021 local areas will need to create 21,000 new posts in priority growth areas to deliver the improvements in services and support set out in the Five year forward view for mental health. Read more here.
State of Care Report
The State of Care report looks at the trends, highlights examples of good and outstanding care, and identifies factors that maintain high-quality care. This year's report shows that that there is regional variation in access to, and the quality of care. Findings raise concerns about how people detained in mental health services being helped sooner, people with a learning disability or autism being in hospital because of a lack of suitable, local community services and people with severe and complex needsbeing kept in segregation for too long and not receiving the specialist care required to meet their needs. Read the full report here.
NHS England webinars

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