Down Syndrome Information Alliance
April 2016
DSIA Events 
 
We offer events for children, self-advocates, and families year round. DSIA members receive substantial discounts on events that require a fee. For discounts to be applicable, DSIA memberships must be active 7 business days prior to the event.
 
Otherwise otherwise specified, DSIA events are open to the entire family! Please join us! 
 
Saturday, April 16 | 12:30pm-1:30pm
Spring Fun for Everyone hosted by Girl Scout Troop #3822
Catheryn Gates Elementary School | 1051 Trehowell Drive, Roseville CA 95678
Please join us for  family fun!
Facepainting
Game
Cake walk
Craft table
Dance party area
Photos with Ariel and Belle (from Fairy Godmother Company in Roseville)
 
There will also be girl scout cookies available for consumption (not sale). We will have gluten free options available as well.
Registration150
 

 
 
Saturday, April 16 | 6:15pm-8:00pm
Self-Advocate (ages 16+) Glow Bowling
County Club Lanes | 2600 Watt Ave, Sacramento CA 95821
Parents are encouraged to leave their children and enjoy some time together!
$5/DSIA Member
$10/ non-Member
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CLICK HERE for more events.
 

 
Saturday, April 16 | 6:00 pm to 8:00 pm
Nevada County Family Pizza Night
Mountain Mike’s Pizza, Grass Valley |  151 West McKnight Way Grass Valley, CA 95945
Questions, contact Jeanne at 530-913-6216
CLICK HERE to RSVP for this event.
 
 
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Saturday, May 21 | 6-11pm
Mirage Banquet Hall | 2159 El Camino Ave, Sacramento
 
DSIA Celebrates over 10 amazing years of serving Sacramento area individuals with Down syndrome, their families and the professionals who serve them.
 
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 DSIA is super excited about our guest speakers and we know you will be too! Joining us for the night are John, Elena, Cristina and Rachel from A&E’s “Born This Way”. 
 
*Dancing *Silent Auction & Raffle *Photo Booth Fun *Sit-Down Dinner *No-Host Bar *Self-Advocate Art Gallery/Auction
 
$100 | individual
$150 | couple
$21 | DSIA Self Advocate
 

(limit three tickets per Self-Advocate, ages 21 and over)
$850 | table of ten (only 1 left at this price!) 
 
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Want to donate an item to our silent auction?
CLICK HERE to download the donation letter for this event.
Interested in sponsoring this event?
CLICK HERE to download the sponsorship package.
 
Self-Advocates,  Your art is needed for the Celebration of Hope Art Gallery.... Please contact Rosalinda at Rosalinda@downsyndromeinfo.org to submit your artwork. Submissions can include photography, drawings, paintings, sculptures etc... Thank you! 
 
 
 
iCan Bike Camp - Registration is Now Open
 
June 20-24
 
William Jessup University | 2121 University Ave, Rocklin, CA 95765
 
Helping individuals with special needs gain confidence through bike riding
 
How Does It Work?
 
iCan Shine uses a fleet of adapted bicycles, a specialized instructional program and trained staff to teach individuals with disabilities to learn to ride a two-wheel bike independently. Participants attend one 75-minute session each day for five consecutive days where they learn to ride while accompanied and encouraged by a volunteer. Gradually the riders discover the skill and joy of riding a bike.
 
Watch a video or two from previous camps to get an idea of what we are all about:
 
iCan Shine is part of a national charitable nonprofit organization. For more information, visit the iCan Shine website.
 
Requirements for participation:
  • Minimum of 8 years of age
  • With a disability
  • Able to walk without an assistive device
  • Willing and able to wear a properly fitted bike helmet
  • Able to sidestep to both sides
  • Maximum weight 220 lbs.
  • Minimum inseam of 20” (measured from the floor while wearing sneakers)
Camp runs Monday through Friday, June 20-24. Riders participate for the same 75-minute session all five days. No changing sessions or times. 
 
Session Times:
  • Session 1: 8:30-9:45
  • Session 2: 10:05-11:20 - SOLD OUT 
  • Session 3: 11:40-12:55 - SOLD OUT 
  • Session 4: 2:00-3:15 - SOLD OUT 
  • Session 5: 3:35-4:50 – will open this session once 1-4 are all booked
Space is VERY limited and on a first come, first serve basis.
 
There is a mandatory parent information meeting on Sunday, June 19th, 9:30 am at William Jessup University. 
 
Fees: 
  • $150 / rider
  • $125 / DSIA member
DSIA reserves the right to contact families to change session times based on registration needs. We will do our best to honor your choice, but circumstances might arise that we ask you to change your session for the week.
Huffington Post highlights World Down Syndrome Day 
 
Why Everyone Should Celebrate World Down Syndrome Day
 
Global Down Syndrome Foundation
"While it is important to celebrate all the things that people with Down syndrome can do and how similar they are to others, I would argue it is equally important to acknowledge the ongoing fight against discrimination that their differences evoke."
 
- Dr. Joaquín Espinosa;
Associate Director for Science, Linda Crnic Institute for Down Syndrome; Professor of Pharmacology, University of Colorado School of Medicine; Director of The Functional Genomics Facility and Co-Leader of the Molecular Oncology Program, University of Colorado Cancer Center
 
CLICK HERE to read the full Huffington Post article.
 
NDSS Launches #DSWORKS™ - An Employment Campaign for People with Down Syndrome  
 
This week, the National Down Syndrome Society (NDSS) launched a first of its kind employment campaign - #DSWORKS™ – at the National Press Club in Washington, DC with the help of Members of Congress, business leaders and stakeholders in the disability community.

NDSS’ #DSWORKS™ is designed to educate the general public about how adults with Down syndrome are employable individuals and should be included in all aspects of the work force, to encourage corporations and businesses to invest in hiring people with Down syndrome and to increase the number of opportunities for individuals with Down syndrome to work in meaningful and competitive employment settings. At the National Press Club yesterday, NDSS President Sara Hart Weir moderated a panel with Congresswoman Cathy McMorris Rodgers (R-WA), Former Pennsylvania Governor and Chairman of the National Organization on Disability Tom Ridge, Jason Hamilton, a mail clerk with EverBank in Jacksonville, Florida and Down Syndrome Association of Jacksonville Executive Director Debbie Revels on “What Congress and States Can Do to Create Employment Opportunities for People with Down Syndrome.”

NDSS Board Member Patti Saylor along with Kennedy Fellow David Egan and Weir described #DSWORKS™, in the press launch. #DSWORKS™ will include three important components:
 
  • Advancing a comprehensive federal and state legislative agenda that breaks down barriers to employment and creates incentives to hire individuals with Down syndrome like the new ABLE to Work Act, which was introduced last week to allow individuals with Down syndrome to save their own money up to the poverty line, and raises the annual amount for employed ABLE beneficiaries to almost $26,000 
 
  • Launching an NDSS Corporate Roundtable of corporations committed to hiring individuals with Down syndrome

As part of #DSWORKS™, NDSS also launched an employment survey that takes a deeper look into employment in the Down syndrome community nationwide. Involvement from employees 18 and older with Down syndrome is needed to make sure we have the most accurate information possible
 
We invite you to join in our efforts at NDSS and through #DSWORKS™! You can also support our NDSS mission and #DSWORKS™ by making a donation to support our initiatives and efforts.
 
To Donate to the National Down Syndrome Society Click Here
"Being Cole’s mom opened my eyes to the disabilities community and gave me a new perspective on my role as a legislator. He is a daily reminder that every human life has potential and something unique to offer the world. Having worked on ABLE Act legislation over the years, I’m especially grateful for the National Down Syndrome Society’s leadership and their #DSWORKS initiative. The NDSS works hard every single day to reaffirm the American commitment we’ve championed since our founding — that no matter your background or your walk of life, this country is a place where you are empowered to achieve a better, more fulfilling life."

-Rep. Cathy McMorris Rodgers (R-WA)

"The National Organization on Disability applauds and supports the new #DSWORKS Campaign," said Gov. Tom Ridge, NOD Chairman. "This new campaign meshes perfectly with the work we at NOD have been doing to help businesses hire more people with disabilities at all levels within their organization. The #DSWORKS Campaign gets it right by demonstrating not only how employers can benefit from attracting employees with Down syndrome, but also how those companies can successfully integrate individuals with disabilities – and see the results in the form of dedicated employees and increased employee engagement across their workforce."

-Former Governor Tom Ridge, Chairman National Organization on Disability

"I wholeheartedly support the goals of the #DSWORKS initiative. The benefits of participating in the workplace extend far beyond earning an income; work helps all Americans find a place in their community and build a sense of purpose. For far too long, our society has failed to appreciate the abilities and unique gifts of Americans with disabilities like Down Syndrome. Through employment, individuals with disabilities enrich not only their own lives, but the lives of everyone they work with. I’m proud to have sponsored the ABLE Act and have introduced additional bills to expand job opportunities and financial planning options for disabled Americans.” 

-Senator Richard Burr (R-NC)
 
 
 
By now you should have received your official 2016 NDSC Convention brochure in the mail. If not, view it online right here. NDSC haa a lot of exciting things planned, like a totally awesome321 Dance™ on Friday night with a Superhero theme. Be sure to bring your favorite Superhero accessory to show off at the dance!
They also have the entire cast of A&E Network's"Born This Way" speaking live at the Opening Session on Friday night. With more than 100 speakers from around the world, you can only"Imagine the Possibilities" of what's to come in Orlando, July 21 - 24.
Registration will open on April 11 so take some time to review the workshop schedule, pre-con lineup and other conference programs to see what they have planned. If you are registering a self-advocate for the Youth and Adults Conference or your children for Kids' Camp, then you'll want to set a reminder on your phone for April 11, because these programs usually reach capacity well before the registration deadline!

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747
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