Down Syndrome Information Alliance
September 2 2016
DSIA Fall Events 
We offer events for children, self-advocates, and families year round. DSIA members receive substantial discounts on events that require a fee. For discounts to be applicable, DSIA memberships must be active 7 business days prior to the event.
Otherwise otherwise specified, DSIA events are open to the entire family! Please join us! 
Saturday, October 1 | 9am-12pm
Self-Advocate Volunteer Opportunity
2016 Walk to End Alzheimer’s – State Capitol, Sacramento, CA
We will celebrate Down Syndrome Awareness month by showing the community how helpful and hardworking our Self-Advocates can be!
Sunday, October 2 | 10am – 12 noon
2015 & 2016 iCan Bike Family Reunion
Hagan Park, Rancho Cordova, Area B1
iCan Bike families are encouraged to bring their riders, bikes and picnic snacks/lunches and enjoy a morning or re-connecting and celebrating learning how to ride a bike.
We must have ten families RSVP by Sept 29th or this event will be re-scheduled.
CLICK HERE for a map of the park
Saturday, October 8 | 9am-11am
New Parent Breakfast
(who have a Child with Down syndrome ages 2 and under)
Arden-Dimick Library Community Room
891 Watt Ave, Sacramento, Ca 95864
Join us for a chance to meet other families and DSIA Parent Mentors. Enjoy food and making new friends!
*Spanish speaking Parent Mentors will be on hand!
There is no cost for this event, but please register to reserve your spot online!
CLICK HERE to download, print and share the flier for this event.
Saturday, October 15 | 6:15pm-8:00pm
Self–Advocate (ages 16+) Sports-A-Rama 
Will Rogers Middle School Gymnasium | 4924 Dewey Dr, Fair Oaks, CA 95628
Parents are encouraged to leave their children and enjoy some time together! Self-advocates will enjoy an evening of physical activity and games led my The Wood Family.
$5/DSIA Member
$10/ non-Member
Down Syndrome 101 for Educators 
Thursday, November 3, 2016 | 9:30am – 12:30pm
UCD MIND Institute | 2825 50th Street | Sacramento, CA 95817
Presenter:  Jennifer Cooper, Director of Education Support and Services, Down Syndrome Connection of the Bay Area
A FREE seminar designed to help you educate, include and enjoy your students with Down syndrome.
Are you an educator working with a student who has Down syndrome currently? If so, do you understand the unique learning profile of your student and how you can most effectively include, educate and enjoy your student? DS 101 for Educators will cover the following topics:
• Common medical issues related to Down syndrome
• Communication issues and strategies for success
• How to improve social skills
• Processing time and memory issues
• Benefits of inclusive education
• Environmental issues which can hamper success
• Ways to adapt the curriculum
• Peer presentations to increase friendships
• Behavior intervention strategies
• Preferred teaching methods
Don’t miss this chance to gain a better understanding of how the diagnosis of Down syndrome affects learning and how you can best support your student.
What are attendees saying about this seminar?
This was the most practical in-service I have attended in my career. I have great tips I can’t wait to try with my student!”
“GREAT presentation! I appreciated having information and advice directed towards paraprofessionals.”
“Anyone who works with students with Down syndrome should be required to attend this seminar.”
“Thank you for offering information and techniques that I can apply in my every day interactions with my student who has Down syndrome!”
Registration150 for this FREE workshop
This workshops is for educators/professionals only, please. One registration per person – each person must register themselves. Thank you!
CLICK HERE to download, print and share the flier for this event.

PLEASE STEP UP FOR DSIA AND CREATE YOUR FUNDRAISING PAGE TODAY! October 6th is the deadline to be guaranteed a Tee Shirt! 
Step Up for Down Syndrome Walk & 5k Run 
Sunday, November 6th
This is your big chance to give back! DSIA needs your help raising funds to continue our programs and outreach into 2017 and beyond.
All of our teams have helped raise important funds! Keep up the awesome work! As excited as we are about fundraising, we are also excited about the day of the walk and picnic. Just a reminder, the Walk is on November 6th from 8am- 12pm at William Land Park.  We have some great activities planned including: 
  • Food Trucks from Chando's Tacos, Kado’s Asian Grill and Cecil's Taste, Yolanda's Tamales will all be available to purchase food from! Enjoy!
  • 1 mile walk and/or 5k Run 
  • Fire Truck Display
  • Bounce Houses
  • Kids Activity Center
  • Resource Tables from Local Agencies
  • Entertainment from Dusty's Puppets and Music to Grow On
  • Bake Sale Table
  • Popsicles and Hot Chocolate from Umpqua Bank
  • Now 100.5 Radio
CLICK HERE for more information. 
Governmental Affairs Newsline Special
September 20, 2016
Advocacy Resources for the
Every Student Succeeds Act
The 2015 reauthorization (amendment) of the Elementary and Secondary Education Act replaced the No Child Left Behind Act (NCLB) with the Every Student Succeeds Act (ESSA). ESSA is a general education statute that applies to ALL students, but focuses on the academic achievement of certain subgroups of students, including those with disabilities. It is critically important that ESSA is implemented in a manner that fulfills its stated purpose:“to provide all children with the opportunity to receive a fair, equitable and high quality education and to close educational achievement gaps”. Throughout 2016, NDSC has been hard at work on the implementation of this new law.
What will happen if your state implements ESSA to fulfill its purpose?
  • The right to a free appropriate public education (FAPE) under IDEA will be aligned to the promise of a fair, equitable and high quality education under ESSA.
  • The system will be pushed to change in ways that make it easier for parents to advocate more effectively.
  • Students with Down syndrome and other disabilities will receive instruction on grade level content and have the opportunity to work towards a diploma and be on track to pursue postsecondary education and/or competitive integrated employment.
  • Schools, where students with disabilities are underperforming for more than two years, will be identified for support and improvement and receive the funding to implement the needed strategies.
Federal Role in State Implementation
One role of the U.S. Department of Education (USED) is to issue regulations that clarify the law and tell states how to implement it properly. Another role is to review state ESSA plans to ensure they meet the purpose of the law. Some members of Congress, state officials and others have been trying to limit USED’s authority to do its job, which is bad for the civil rights of students. NDSC has been involved in the regulatory process, working to encourage the strongest possible regulations, in spite of considerable pushback. The more protections there are in the federal regulations for students with disabilities, the fewer problems parents will have at the state and local level.
NDSC Resources for Federal Advocacy
NDSC submitted comments to USED on three sets of proposed federal ESSA regulations:
The public comment period for these three sets of regulations is over. Thank you to all who submitted comments! NDSC will be commenting on a fourth set of proposed regulations, which ensures that states do not merely replace state and local funds with ESSA funds. Federal funds are supposed to supplement, not supplant, state and local funds. This is the only way to improve learning conditions, instead of maintain the status quo.
NDSC Resources for State ESSA Advocacy
NDSC has been helping families and other advocates across the country get involved in the development of their state’s ESSA implementation plan. These plans are being developed RIGHT NOW. States are required to get the input of parents and organizations that represent students with disabilities during the development of the state plans, as well as after the draft plans have been developed.
NDSC has developed the following tools for state ESSA advocacy:
NDSC Resources for Individualized Education Program (IEP) Meetings
During the reauthorization process, NDSC successfully advocated for much stronger provisions in ESSA with respect to students who take alternate assessments, than existed under NCLB. NDSC also advocated for the incorporation of provisions on Universal Design for Learning (UDL). Now UDL is in both ESSA and the Higher Education Opportunity Act. The following resources were developed by NDSC to help families use ESSA provisions, along with IDEA, at their children’s IEP meetings.
Upcoming Conferences 
2nd Annual Best Practices in the Education of Children with Down Syndrome
This years conference will highlight "Keys to Student Success in Inclusive Settings"
October 3, 2016
San Joaquin County Office of Education | 2707 Transworld Drive, Stockton, CA 95206

CLICK HERE for more information. 

Supported Life Conference 
Supported Life Institute and SCDD
This Conference is a place where professionals plus families & self-advocates come together to learn about supports that will help people with developmental disabilities be fully included in the community.
October 6-7, 2016
Crowne Plaza Hotel | Sacramento North East, Sacramento, CA
CLICK HERE for more information.

SCDD-Sacramento &
DRC’s Office of Clients’ Rights Advocacy
are offering 3 special education workshops this Fall:
Overview of Special Education Rights and Responsibilities  Saturday, September 24, 2016, 9am-12pm. 2033 Howe Ave. Ste. 160, Sacramento95825

How To Read My IEP and write and evaluate goals 
Saturday, October 29, 2016, 9am-12pm. 2033 Howe Ave. Ste. 160, Sacramento95825 
Overview of Special Education Rights and Responsibilities
Monday, November 7, 2016, 9am-12pm. Yolo County Office of Education, 1280 Santa Anita Ct. Ste. 100,Woodland 95776
Each training is free of charge, but RSVPs are required.
Please let us know if you need interpreting or any special accommodations. Spanish speaking staff will be available to give the presentation in Spanish – please let us know if you prefer this when you RSVP.
To RSVP, please or
call 916-263-3085 & provide your name, email address, and phone number. Space is limited.
Please share flyer with others who may be interested!
For more information, please 
A new study looking at the prevalence of Down syndrome over the last 60 years finds that the condition may be far less common than previously thought. 
CLICK HERE to read more.
A reality show following the lives of seven young adults with developmental disabilities has come out on top, winning an Emmy for outstanding unstructured reality program.
CLICK HERE to read more.
From the National Down Syndrome Adoption Network 
California families ONLY needed for 5 year old boy with Down syndrome, who needs an adoptive family. Juan is Hispanic and healthy, and enjoys music, dancing, Legos, and loves to be around others! There are NO fees for his adoption.
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If you are interested in Juan, please email
Special Education 
Back to School Tips 
The Center for Parent Information and Resources sends out Buzz from the Hubmonthly which pulls information from multiple sources to help parents who have children with special needs. Check these back-to-school tips from a recent issue:
A handy guide filled with useful communication tips for families working with schools or other agencies
Planning ahead for an individualized meeting about their child's behavior needs will help parents explain their own ideas about the best way to help their child in addition to listening to the ideas of others.
A parent guide series describing each of IDEA's mechanisms: state complaints, mediation, due process complaints and hearings, resolution sessions, and IEP facilitation.
Here are Reading Rockets' top 8 back-to-school tips for parents emphasize communication, organization, and staying up-to-date on special education news. 
Here are 10 tips to help parents get off to a good start at the beginning of the new school year.

Wrightslaw Special Education Resource, Fall 2016 
For parents of children with special needs, “back to school” means the start of a new IEP advocacy year. Begin now!
  • monitor
  • evaluate
  • document
Help the School WANT to Help Your Child
Educate school personnel so they want to help your child. Learn how to resolve problems by putting yourself in the shoes of the people on the other side.
Starting a New IEP Advocacy Year: Back to School Tips
It's that  time again! Get tips to keep in mind as you start a new IEP advocacy year.
9 Ways to Boost Your Child's Attitude Before the Bus Arrives
What can you do before your children walk out the door to help them feel they can conquer anything? No-nonsense pointers will help you remove last-minute stress every weekday morning.
New Anti-bullying and Down Syndrome Awareness Children’s Book Soars with a Positive Message 
Author David Villanueva Jr. has completed his crowdfunding campaign to self-publish the children’s chapter book The Butterfly Princesses about the importance of friendship, anti-bullying, and Down syndrome awareness.
Years ago when he pitched the book to publishers, he received praise from editors who said that the book was “fun and had a positive message,” but they said it wasn’t “commercial enough” for them to publish it.  This led him to launch the crowdfunding campaign to getThe Butterfly Princesses published, because he felt ALL children should be able to have a character in a book they can relate to. 
Discover the “Butterfly Princesses,” Jinni, and her BFF, Tinsley, a little girl with Down syndrome, as they encounter bullies, a backyard full of surprises like a roller coaster and a sunflower garden with endless butterflies, and a talent show they are determined to win!   Being different isn’t an obstacle, its unique!
The Butterfly Princesses is now available on and
David Villanueva Jr. resides in Los Angeles, and is the author of the children’s books Bella the Crooked Hat Witch, Caleb’s Birthday Wish, The Misadventures of Mel B, The Extraordinary Capers of Lochlin de Carlo (coming late 2016), and The Butterfly Princesses.
For More Info Check Out:
USC UCEDD Webinar: I Got Hired! Increasing employment of youth & adults with DD 
2016 USC UCEDD Webinar Series:
Issues in Intellectual & Developmental Disability (I/DD) - What Self-Advocates and Families Need to Know
There is still time to register for the next *FREE* webinar in the USC UCEDD series:
“I Got Hired!” Increasing Employment of Youth & Adults with Developmental Disabilities
Employment First Webinar
Thursday, September 29, 2016 at 10:00am PST
Click Here to Register
In this webinar, Olivia Raynor, Ph.D., director of the Tarjan Center at UCLA, and Kecia Weller, Self-Advocacy And Community Liason, will discuss:
  • What the Employment First initiative means for youth and adults with developmental disabilities
  • Things we now know about policy and practice and competitive integrated employment—as learned from CECY (California Employment Consortium for Youth with Intellectual & Developmental Disabilities)
  • Changes taking place in California that affect self-advocates who want to wo

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747

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