Down Syndrome Information Alliance
May 2016
 
DSIA is  participating in the BIG Day of Giving - an annual, online giving challenge set for 12 a.m. to 11:59 p.m. on May 3!
 
How can you give? On May 3rd, starting at 12:00am midnight, visit https://bigdayofgiving.org/npo/down-syndrome-information-alliance and make a tax-deductible gift.  You will have 24 hours to make your donation; all giving will end at 11:59pm on May 3rd.

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On this day, please consider making a donation to the Down Syndrome Information Alliance by clicking THIS LINK
DSIA is excited to offer this special oppurtunity!  
 
Sunday, May 22 | 9:30am-10:30am
Born This Way Parent Panel 
 
 
 
Double Tree Hotel | 2001 Point W Way, Sacramento, CA 95815
 
Join DSIA for a special opportunity to ask questions to the parents of Born This Way’s Cristina, Rachel, and Elena.
 
This is open for DSIA members ONLY; Self Advocates must be 12 or older. All DSIA members have their code for this event. 
 
 
Because of time constraints, we will limit two questions per individual. Please submit your questions when registering.
 
$35 / DSIA member
$21 / DSIA member, Self-Advocate (ages 12+)
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DSIA Events 
 
We offer events for children, self-advocates, and families year round. DSIA members receive substantial discounts on events that require a fee. For discounts to be applicable, DSIA memberships must be active 7 business days prior to the event.
 
Otherwise otherwise specified, DSIA events are open to the entire family! Please join us! 
 
 
Saturday, June 4 | 10 am 
Self-Advocate (ages 16+ AND ages 10 - 16)Archery
Maya Archers |  750 Galleria Blvd. Roseville, CA 95678
Come learn how to do archery with qualified instructors and all the equipment is available for your use.   Using a bow and arrows and shooting at targets and balloons is a lot of fun.   If you need more info you can contact Lou or Carole Pope at 916-717-2452.
$5/DSIA Member
$10/ non-Member
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Tickets must be purchased by May 24th so we have enough instructors!
SOLD OUT! 
 
Want to donate an item to our silent auction?
CLICK HERE to download the donation letter for this event.
Interested in sponsoring this event?
CLICK HERE to download the sponsorship package.

 Raffle Tickets for the Auction Items
$5/ 1 ticket
$20 / 5 tickets
CLICK HERE to purchase online, and bring your receipt with you the night of to exchange for tickets.
 
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Saturday, May 21 | 6-11pm
Mirage Banquet Hall | 2159 El Camino Ave, Sacramento
 
DSIA Celebrates over 10 amazing years of serving Sacramento area individuals with Down syndrome, their families and the professionals who serve them.
 
 
 iCan Bike Camp - VOLUNTEERS NEEDED 
June 20-24
William Jessup University | 2121 University Ave, Rocklin, CA 95765
 
 
 
Those interested in registering for this great program as a volunteer should CLICK HERE to register online or email info@downsyndromeinfo.org for more information. 
 
CLICK HERE to download, print and share the flier for volunteering!

Senate Budget Subcommittee on Health to Consider CCS on 5/5
CCS Transition Should be Removed from Budget to ensure patient protections
The Department of Health Care Services has included language in the State Budget Trailer Bill to authorize the CCS redesign even though the transition is not a fiscal issue. Concerned groups may contact the Senate Budget Subcommittee 3 on Health and Human Services before the May 5th hearing to encourage removal of this language from the Budget Trailer Bill.

Letters may be sent to:

Senator Holly Mitchell
Chair, Senate Budget Sub-Committee 3 on Health and Human Services
Email: michelle.baass@sen.ca.gov
Fax: 916-668-7004

Attend the Hearing!
Senate Budget Sub-Committee 3 on Health and Human Services
Thursday, May 5
9:30am or upon adjournment of the Senate Floor
State Capitol, Sacramento (Room TBA)


 "Principles for the Future of the California Children's Services Program," outlines patient protections essential to any changes in the CCS program.
View the Principles Document Here
 
DSIA & Sacramento Republic!  
 
DSIA is excited to partner with the Sacramento Republic Soccer Team. Use THIS LINK to purchase tickets along with PROMO CODE: DSIA and receive $5 off your ticket price! 
 
 
 
California SCDD - 21st Annual Statewide Self-Advocacy Conference: "Get Connected" 
 
Conference Topic Areas
 
Anti-Bullying & Abuse Prevention
Contacting Legislatures
Health & Wellness
Jobs and Microenterprises
People First & Self-Advocacy
Relationships and Sexuality
Self-Determination
Transition
Youth Self-Advocacy Skills
Emergency Preparedness
Regional and Statewide Networking
Independence and Living Options and more....
 
CROWNE PLAZA HOTEL
5321 Date Ave.
Sacramento
FRIDAY & SATURDAY
MAY 6-7, 2016
 
For more information please contact:
Supported Life Institute
2025 Hurley Way,
Suite 105, Sacramento, CA 95825
Contact 916-567-1974 info@supportedlife.org 
 
CLICK HERE to register.
 
Please register by April 22, 2016
 
IEP Survival Class 
 
A special needs child needs a special parent! Come and learn how you, as a parent, can influence and improve your child's education. Learn how to get your child help without losing your sanity! Bring your child’s IEP and your questions and come learn from an experienced parent, Amy Sellers, Education Consultant, Michelle Justus, and a disability-rights attorney, Buddy Pohl.
 
When: May 10 th at 7pm
Where: Raley’s Community Room (in the back of the store) 166 Placerville Drive
Cost: FREE!! We just want to help!
 
 
More Questions? Contact Amy Sellers at 916.847.9972
 
Special Kids Picnic 2016


Registration is now open for the annual Special Kids Picnic set for 4 p.m. to 8 p.m. on Saturday, June 18 at Fairytale Town. To sign up, please click HERE.
Dreamnight at Sacramento Zoo 
 
On Friday evening, June 3, 2016, the Sacramento Zoo will once again host Dreamnight, a special free evening for children with chronic illnesses, disabilities or special needs and their families. Dreamnight is an opportunity to visit the Zoo in a relaxed environment with other children and families who face similar challenges.
 
This is the 11th year the Zoo will be hosting Dreamnight. This international event began in the Netherlands and is always held on the first Friday in June. Now, hundreds of zoos around the world participate in Dreamnight.
 
CLCK HERE to view the flyer.
 
NDSC - NDSS Education Alert
May 17, 2016
Proposed Federal Regulations for the Every Student Succeeds Act
to be Released Soon
 
The Every Student Succeeds Act (ESSA) required negotiated rulemaking on certain aspects of the law, such as assessments. Negotiated rulemaking means that a variety of stakeholders are selected to negotiate with each other about language for the proposed federal regulations on these topics. If every member of the negotiated rulemaking committee agrees with the regulatory language that has been developed, then there is consensus and that language must be used for the proposed federal regulations.
 
Recently a negotiated rulemaking committee reached consensus on regulations governing assessments. The deck was stacked with many more paraeducators, teachers and administrators than parents and representative of civil rights groups. Only one person represented all students with disabilities. Ricki Sabia, NDSC’s Education Policy Expert, provided significant input to the civil rights and disability members of the negotiated rulemaking committee on issues related to state alternate assessments, which are used to measure the academic achievement of most students who have Down syndrome.
 
Please click here for a summary and analysis of the consensus based regulatory language developed by the negotiated rulemaking committee that is most important to students who have Down syndrome. The full text of the regulatory language can be found here: http://1.usa.gov/1XjLP7h.
The proposed regulations on assessments (which came out of the negotiated rulemaking committee), as well as all the other ESSA federal regulations, are expected to be released in different packages for public comment over the next few months. The public comment periods will provide national advocates and families with an opportunity to support the provisions they like and ask for edits where changes should be made.
NDSC will be submitting public comments for each package of proposed regulations. Stay tuned for joint NDSC-NDSS Action Alerts encouraging you to contact the U.S. Department of Education with your support for the NDSC comments.
For more information, please contact Ricki Sabia, NDSC Senior Education Policy Advisor, atricki@ndsccenter.org or Heather Sachs, NDSS Vice President of Advocacy & Public Policy athsachs@ndss.org
 
Recognizing the importance of education policy and how it will affect our constituents, you may receive informational emails, called Education Alerts, and Action Alerts from both the NDSC and NDSS. Our two organizations are committed to working together on education issues, including ESSA implementation, IDEA-related issues, and other education matters. NDSC’s Senior Education Policy Advisor, Ricki Sabia, will lead this collaboration, and will work closely with Heather Sachs, NDSS Vice President of Advocacy & Public Policy, coordinating education policy strategy to best serve the entire Down syndrome community.
 
Capitol Steps
 
Our Contact Information
National Down Syndrome Congress
30 Mansell Court, Suite 108
Roswell, GA 30076
800.232.6372
ndsccenter.org
 

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Address postal inquiries to:
Down Syndrome Information Alliance
5098 Foothills Blvd Suite 3-464
Roseville, CA 95747
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